CLL and CGD: I recently had a CT scan... - CLL America Support

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CLL and CGD

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I recently had a CT scan and the results say I have an inherited disease called Chronic granulomatous Disease (CGD) where white blood cell (phagocyte) that usually helps the body fight infections doesn't work properly. As a result, the phagocytes can't protect my body from bacterial and fungal infections. It says a lifetime of antibiotics and antifungal are necessary.

My questions are, does anybody here have CGD and CLL? Are there extra considerations that need to be taken with drugs because of CLL?

Does anyone know if CGD can be dormant and then surface? I had encephalitis in 2021 and ever since I've had an issue with my IGG going low. Having low IGG is problematic with CGD. I'm not 100% positive its from my CGD, but in reading posts from others with CLL and low IGG, it sound like it could be from CGD. I've had to have the IGG infusions about once every 6 months.

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