CLL and CGD: I recently had a CT scan... - CLL America Support

CLL America Support

1,679 members483 posts

CLL and CGD

MyCLLJourney profile image
0 Replies

I recently had a CT scan and the results say I have an inherited disease called Chronic granulomatous Disease (CGD) where white blood cell (phagocyte) that usually helps the body fight infections doesn't work properly. As a result, the phagocytes can't protect my body from bacterial and fungal infections. It says a lifetime of antibiotics and antifungal are necessary.

My questions are, does anybody here have CGD and CLL? Are there extra considerations that need to be taken with drugs because of CLL?

Does anyone know if CGD can be dormant and then surface? I had encephalitis in 2021 and ever since I've had an issue with my IGG going low. Having low IGG is problematic with CGD. I'm not 100% positive its from my CGD, but in reading posts from others with CLL and low IGG, it sound like it could be from CGD. I've had to have the IGG infusions about once every 6 months.

Written by
MyCLLJourney profile image
MyCLLJourney
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

Ibrutinib and Medicare

I'm from NJ and have relapsed SLL - unmutated - as far as I know I don't have any the mutations...
ReneeSusan profile image

Update - CLL- RT- Breast Cancer- Myelodysplasia- Future Transplant

Hello I want to update my story. In 2017, I was diagnosed with CLL and treated with Ibrutinib...
Priss69 profile image

Cll Leukemia (leg cramps)

Hi Everyone, First time using this post. I have leg cramps every night, is this a side effect of...
helenolton profile image

I’m unclear what to think of my diagnosis

I’m new here and not clear about the diagnosis given on my Flow Cytometry, which classified me with...

CLL and life insurance

Does anyone know if it's possible to buy life insurance after a CLL diagnosis? Has anyone been able...
TimHB profile image

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.