Posts - CLL America Support | HealthUnlocked

CLL America Support

1,648 members•470 posts

All posts for April 2016

It's Forum Friday- let's talk about treatment options! Have you been on any treatments?

https://healthunlocked.com/p2cllamerica/polls/133492531/what-treatments-if-any-have-you-had-for-your-cll-feel-free-to-expand-in-the-comments More info here-...

https://healthunlocked.com/p2cllamerica/polls/133492531/what-treatments-if-any-h...

•9 years ago

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Where Are We Headed With Frontline CLL Treatment Approaches?

In this roundtable discussion with Dr. John Gribben, University of London, and Dr. Constantine Tam, Peter MacCallum Cancer Centre, Patient Power Founder,...

In this roundtable discussion with Dr. John Gribben, University of London, and D...

•9 years ago

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May 14th CLL educational event

I know a lot of you are newly diagnosed and/or on watch and wait. That being said, you are probably wanting to learn as much about CLL as you can so you can...

I know a lot of you are newly diagnosed and/or on watch and wait. That being sai...

•9 years ago

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Bob Azopardi: My Clinical Trial Experience

Patient Power Founder, Andrew Schorr, interviewed Bob Azopardi, a 16-year CLL patient who participated in the Phase III arm of the venetoclax (Venclexta)...

Patient Power Founder, Andrew Schorr, interviewed Bob Azopardi, a 16-year CLL pa...

•9 years ago

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New CLL

70 Year old male. Diagnosed in Jan16. 11q del, unmutated. Stage 1, watch and wait but on a short leash. Main complication is drug I take for RA (Simponi)....

70 Year old male. Diagnosed in Jan16. 11q del, unmutated. Stage 1, watch and ...

•9 years ago

Diagnosed after an appointment for something else

I had a very painful night back in February, 16 with severe pain on my left side just below my rib cage. Went to the doctor the next day to be checked out on...

I had a very painful night back in February, 16 with severe pain on my left side...

•9 years ago

Diagnosed in Feb , 16

Diagnosed two months ago. Given my lymphocyte count it is clear that I have had CLL for a number of years. Other than that I seem pretty stable and at 17%...

Diagnosed two months ago. Given my lymphocyte count it is clear that I have had...

•9 years ago

The Evolving CLL Treatment Landscape

Patient Power Founder and host, Andrew Schorr, interviews CLL expert Dr. Richard Furman to discuss the evolving CLL treatment landscape, including the...

Patient Power Founder and host, Andrew Schorr, interviews CLL expert Dr. Richard...

•9 years ago

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Dr. LaVerne's Awesome Adventure: My 2nd Act

If you have been a part of the CLL community for very long, you will be acquainted with Dr. LaVerne and her "awesome adventure" through CLL. If you are not...

If you have been a part of the CLL community for very long, you will be acquaint...

•9 years ago

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New poll for Forum Friday- all about clinical trials

Thank you so much for all your feedback on last week's poll regarding when you were diagnosed. Let's keep up the conversation by talking about clinical trials....

Thank you so much for all your feedback on last week's poll regarding when you w...

•9 years ago

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What Could a New Drug Approval Mean for CLL Patients?

Dr. William Wierda, medical director of the Department of Leukemia at the University of Texas MD Anderson Cancer Center, joins Patient Power to discuss the FDA...

Dr. William Wierda, medical director of the Department of Leukemia at the Univer...

•9 years ago

Breaking News: Expert Perspective on Venclexta (venetoclax) Approval

The U.S. Food and Drug Administration (FDA) has approved a new drug Venclexta (venetoclax) for use in CLL patients with the 17p deletion. Andrew Schorr...

The U.S. Food and Drug Administration (FDA) has approved a new drug Venclexta (v...

•9 years ago

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CLL and Travel: Is It Safe?

It's about that time when everyone starts thinking about vacation and travel. How safe is it for CLLers to travel with a compromised immune system? Dr....

It's about that time when everyone starts thinking about vacation and travel. H...

•9 years ago

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Do you have 17 P Deletion? This is a must-read for you!

Breaking news! Venclexta (ABT-199) was just approved for CLL patients with 17 P deletion. Stay tuned for an expert interview for more information soon! In the...

Breaking news! Venclexta (ABT-199) was just approved for CLL patients with 17 P ...

•9 years ago

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It's Forum Friday! Take our poll (on the right side) on how you were diagnosed.

Once you take our poll on how you were diagnosed, you might want to hear how others were diagnosed through these videos: Meet Rich:...

Once you take our poll on how you were diagnosed, you might want to hear how oth...

•9 years ago

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Happy Forum Friday! Looking for the video associated with our latest poll? Here it is!

This video gives personal accounts from Patient Café participants who discuss how CLL impacted their relationships. The café members discuss the effects of CLL...

This video gives personal accounts from Patient Café participants who discuss ho...

•9 years ago

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