After almost 3 months of testing, starting with University of MN Fairview & then Mayo, it looks like they are finally narrowing in on a diagnosis. The most significant results (to my uneducated eye) are the Del17p and unmutated IGHV. I have a follow-up at Mayo in 3 weeks, so hopefully they will have some summary for me.
Anyone out there with experience with treatments for the unmutated? I've been doing some reading on this & started to scan the CLL group threads. I thought I would reach out to the community as well to find others that I can learn from!
Thank you,
Paul
Written by
mrgreentea
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I have similar background. Did a clinical trial of I plus V 6 years ago and have done very well- the Captivate trial. Check out my past posts. Also look up CLLSociety.org They have great information .
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