I am so sorry I haven't posted for ages or even contributed on here. I read everything every day so I know how you are all doing but didn't feel up to posting - for some reason - not sure why.
So what's been happening with me. I have completed third line chemo of topetecan which stopped the tumors growing but didn't reduce them. As soon as I stopped they started growing again so now lined up for 4th line chemo of carboplatin and gemcitabine. Hopefully this will reduce the buggers but if it only stops them growing well that's 6 months of no growth to look forward to. So far I have coped well with all the chemo they throw at me and plan to continue working throughout my next treatment. Fingers crossed it will do the trick this time - after all my onc said that carbo saved my life on my first treatment and it may do the trick again. Hopefully I will last a few more years.
I have been a little depressed as I have been catching every bug going recently and I have been getting some pain from my tumors which until recently I didn't have but other than currently fighting off a chest infection I do feel better in myself. I suppose we can't be jolly all the time can we and all the time I didn't have pain I could really pretend there was nothing wrong with me.
So what else have I been doing. Not too much due to the bad weather but I have roller skated at my sons roller skating party hanging onto the arms of two georgeous young men - that was a bonus!
I have played a spy game ducking, climbing and sliding through a big warehouse trying to solve the various missions with my children and my friend and her children. That was great fun but did I ache afterwards!
I treated the boys to be zookeepers for the morning as I had enjoyed doing this so much.
I am due to go horse riding on a beach when the stables can arrange a date for me. I used to own my own horse years ago but I have never galloped along a beach. I am going on a spa day of pampering Sunday with the mum of one of the children I look after and best of all we are going to disneyland Paris for a week at the end of April. The children are so excited but maybe not as excited as me!
I felt that my husband was missing out so his treat is to fly a 737 simulator which we are doing Wednesday. The good thing is myself and the boys can sit behind him as "passengers'
In the summer - chemo permitting - I will be feeding gorillas in Kent and going on a mini safari and African meal while we are there with the boys. We are also going to 'go ape' and climb through the trees on rope ladders and zip wires!
Tractor driving, tank driving and camel riding are still to be arranged. So health permitting they are planned for this year as well and who knows what else I will come up with!
Well that's my news update. I hope you are keeping well and can't wait until May to meet lots of you.
Hugs Jackie xxxx