Hi lovely ladies and men.
I’ve not been here for a while. Was in hospital where they sent me home under hospice care.
I have nurses in daily to do my syringe driver which contains Octreotide. It’s an anti sickness drug. Works most of the time. They drain my ascites every few days too. Last two drains have been worrying as the ascites is like yellow milk. My CNS is going to speak to my consultant about that. I’ve goigled that it can be caused by a blocked lymphatic system.
Had scan in kidneys on Monday. Hoping kidneys are ok as can continue with cisplatin and gem. Struggling with cisplatin though. I feel it’s killing me.
Feel like I ve got full blown flu while running a marathon then getting hit by a train. It’s brutal. Makes me cry. Horrible chemo but it seemed to half my CA125 number.
I’m eating now. Ate a double cheeseburger the other day. In hospital I couldn’t eat a Rice Krispie or drink a sip of water. Im still so thin though. My body is baggy as I’ve lost nearly three stone. Had sausage and mash yesterday but threw it all up. I think that milky ascites makes me feel queasy.
They say my prognosis is poor. Maybe it is but I’m still here. Still fighting.
I’m taking cannabis oil. Don’t know if that’s helping and tastes like I’ve licked an ashtray but I’m sure it’s not doing me any harm. I sleep well.
How are all you lovely ladies? I hope you are all doing ok. Sending you all so much love and positivity. Keep strong.