I was diagnosed with OC 3c in September 2016. My CA125 was over 9000 at that point and rose to over 11000 as I started chemo (weekly paclitaxel and 3 weekly avastin and carboplatin). I had surgery in January 2017 and have had 7 weeks more chemo since. I have two more weekly sessions of paclitaxel to go then nine months of three weekly avastin. My CA125 dropped to 124 three weeks ago but I was upset to find that it had gone up to 130 this morning. I was seen by a different oncologist today who didn't seem to understand why I was upset. Even if my CA125 had stayed the same it would be much higher than it should be. I certainly don't want it to start rising. I know that 6 is not a lot but 130 is still high and I've nearly finished my chemo.
I know that I should feel grateful that my CA125 is not still in the thousands and that CA125 is only one of the cancer indicators but I am really struggling to stay positive at the moment. Has anyone else been left with such a high CA125 after chemo and surgery? is it a sign that the cancer hasn't gone away?