I want to live

[Crimax72]

I was operated on for ovarian cancer in October 2017. It was a high grade 3c serous. I have undergone many lines of chemotherapy, maintenance and oral therapies.

Carboplatin and taxol

Bevacizumab

Carboplatin and Ganetespib (Eudarian experimental protocol)

Niraparib

Yondelis and Caelyx (Tramant protocol)

yondelis

Carboplatin (discontinued due to allergies and resistance to platinum)

Weekly Taxol

Weekly Gemcitabine

Letrozole

I wish there were more studies and research to find a definitive cure for ovarian cancer

[Lyndy2]

Hello Crimax72, how are you now? I think we can all agree with your wish to find some kind of definitive treatment. I suspect that we will make progress in keeping OC at bay delivering the idea that it might be a disease that is managed over time.

You are very young to have had so much treatment. Can they offer you anything else?

I hope you are as well as you can be xx

[Crimax72 in reply to Lyndy2]

I'm fine now.I have peritoneal carcinomatosis

I'll do the computed tomography at the end of May and see if the letrozole worked.

[delia2]

Hi. Wow. You have been through a lot of treatments! There is a new drug in the US for platinum resistant people but you have to express folate receptor alpha (they test for it but it takes a few weeks). The drug is called Elahere. I don't know if it's available in Europe but google it. Best wishes for catching a break! xx

[Crimax72 in reply to delia2]

HI. unfortunately in Italy the elahere has not yet been approved. i know they only give it for compassionate use. thank you ❤

[Riverflo in reply to Crimax72]

Hi, Just to say that Elahere isn't great for everyone. I went on the trial with high hopes but during the few weeks I was on it, my cancer accelerated significantly. Wishing you all the best. x

[Sunset9 in reply to Riverflo]

Hi, I am sorry to hear Elahere didn’t work for you. I just had the first infusion, so it is a bit discouraging to hear your experience. May I ask what was your Folate receptor expression level? Mine is supposedly at 90%, so I was hopeful. Thank you.

[Riverflo in reply to Sunset9]

Hi, oh no, I'm sorry. I mean it seems to work for lots of people but the statistics for these things are never 100% and I'm just one of the unlucky ones. Niraparib didn't work for me either, so please. Don't get discouraged.I did ask what my foliate receptor was but they just said I must be medium to high or wouldn't be on the trial. Not sure why they were so cagey but I live in Spain so maybe a bit different here.

Anyway, please stay positive. I hope it is a great help to you. X

[Iside]

Hi, Whereabouts in Italy are you based? My husbands family are based in Parma & both his sisters had OC & coped well with the invasive treatment. Always thought Europe had a better record of success in its treatment of OC !!! Cheers Iside

[Leniko]

I sure Second That! I’m on 4th Line and most of those meds sound familiar. Hang in there!

[AuntyOrange]

Yes that is a lot to cope with but how lucky are you to still have options. Research is the key & although I don't see it happening in my lifetime (I'm 71) I'm praying that women of the future will benefit from an easier & more effective form of treatment. In the meantime I'll continue to LIVE with cancer. Love & hugs to you Crimax72. xxx