Hi Lovely Ladies. Hope you are all doing well and have an abundance of energy, support, perseverance and love and in your lives.
I am in my final weeks of chemo (18 weeks of dose dense chemo with Carboplatin and Taxol via dose dense therapy). I am on Lovenox to manage the clotting factors assoc with OC and Chemo. (I had a DVT and a bilateral PE in Jan). Since being on Lovenox I have clotted twice once in the arm and just last week in the neck. My blood level however is very thin...almost dangerously so. While they continue to work to find the right dosage for me I am wondering if the buildup of Taxol or Carbo in my system is also impacting the blood. Do any of you have a similar experience? How was it resolved?
I am more worried now about having a stroke or deadly brain bleed than I am about my cancer.
Your thoughts, suggestions and experience will help me greatly. Thank you in advance
Goodness, that sounds worrying. I haven't had any issues with blood thinning, but Taxol seems to have a huge number of unusual side effects for some of us. I am worried about getting a bowel perforation in the middle of the night, and there not being a surgeon on duty to save me. The NHS seems to be in such a bad way I'm worried they will just let me die as I am over 50 and have cancer. I wish I could say they are monitoring me closely, but I can't. I hope you have more faith in your docs than I do.
Thanks for the response, Hectoria. Worry about having cancer is hard enough let alone adding worries about the possible side effects of treatment or disease progression. I hope you never experience a bowel perforation - but if you do I am confident that there will be a doctor on call who can save you. 50 is young and there are many good years ahead. Perhaps you can switch doctors or get another opinion on your case. Don't give up faith - take charge and make it happen! Lots of women on here have done so - you can too! Best wishes. Alma
I feel and look quite young, but I think my oncologist has pretty much given up on me. I saw her this morning and it was all doom and gloom as usual. She has obviously never heard of the nocebo effect (the opposite of the placebo) as she sends me into a downward spiral every time. Best wishes with your treatment Alma. x
HI Hectoria, I just read your post and no way should you be feeling that way about your oncologist you need to have total faith in her, not only should she be giving you the best treatment she can but encouraging you to be positive, how can you if she is not maybe it's time to have a happy positive second opinion..Take care Lorraine xx
Hi Hectoria.......I would seek out a different oncologist. The first one I saw when I was first diagnosed was the way you describe yours......doom and gloom. I never saw her again and have been with upbeat doctors ever since. Attitude is so important, and anything that keeps you positive will only help. Best wishes.....Judyved
50 is not old. Although Ihavent had the problems you mention, I did have an operation to remove recurrent tumours at 67 when nothing else was doing any good. Chemo and hormone therapy were no longer helping. And Istill don't think I'm old. My cousin had chemo for womb cancer at 78
I am having problems with my platelets as bone marrow is producing too many which could cause clots etc. They are doing tests at Addenbrooks to find out the cause. Not heard of anyone else mention this on this site. Finished chemo in May last year after my first recurrence after 10 year all clear and it's recurred to peritoneum. I wonder if chemo has caused it. Constantly worry about it recurring again xx
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