I'm on Amgevita (40mg fortnightly) since May this year.
I also take Rheumalef 20mg daily.
I don't see any improvement in my condition since the start of Amgevita.
On the contrary I feel that the disease is progressing more rapidly, after having started with Amgevita.
I did mention this to my doc after 1 month of starting Amgevita. My whole body was absolutely tender and painful. So she diagnosed me with fibromialga and prescribed Nurika. She did say that it was impossible that Amgevita could have the opposite effect.
There was some relief after taking the Nurika, but the immobility and pain continued. I have stopped taking the Nurika since.
According to the last blood report, my inflammation levels are within normal range.
Unfortunately, I had to restart with prednisone just for relief. I am able to do simple tasks again...
I'm due to see my Doc in October.
Has anyone else had a similar experience or outcome with Amgevita or any other Biological therapy?
Kindly share your experiences and or thoughts
earlier this year Enbrel stopped workimg for me, so I was swapped to Amgevita. It did nothing! And my flare comtinued to get worse so went back on steroids.
After 12 weeks we stopped it, and I am now trying Tocilizumab.
Glad to know that I'm not alone.
I M hoping that I don't have do biologic hopping.
Maybe cortisone is the way to go.
i’m hoping to get off it as soon as possible!! Cortisone is evil in my book…
I heard so. 😏
Steroids are excellent for short term use to control the inflammation. But they do not tackle the immune overactivity that is causing it. It just damps everything down.
If it means 'hopping' between biological treatments then that's what we need to do, in order to find the correct pathway. Unfortunately it isn't (yet) possible to identify which part of our immune system is being overactive, which is why it's trial and error.
It takes patience and can seem endless sometimes, but finding the right treatment is life-changing.
Thank you. I know cortisone is really not a good option. I try not to take is regularly.