Amgevita

[Mistydawn]

Hi, anyone any experience of taking Amgevita please? If yes, what dose and frequency? Side effects? Any advice on administering it? How quickly did it start to work?

Sadly I was unable to tolerate Rinvoq do am now being offered Amgevita.

Thank you.

[Taraheart]

Hiya, I’m in the opposite situation, amgevita did work for me but couldn’t tolerate the side effects(palpitations constantly..was already on medication for AF)…so they want to try Rinvoq next..but I’d prefer to have the shingles vaccine first Shingrix, I’m 62 so hope they’ll let me have it on nhs..pricey privately.Tried the amgevita for 5 months…how long did you try Rinvoq tablets ..what happened to stop it?

I was having Amgevita 40mg ..2 weekly injection..found it less painful in my belly..and warmed up room temp for 30 mins before injecting. The pre-filled pen is a godsend. Wish I didn’t have the side effects as my blood work was near normal on it and I could move like a normal person again!

As always we’re all different….here’s to finding the winner for both of us xxx

[Cal48 in reply to Taraheart]

I received Shingrix on NHS I just contacted the doctors and asked for it.

[Mistydawn in reply to Cal48]

Same for me too.

[Mistydawn in reply to Taraheart]

Thank you Taraheart. I have actually combined my response to this in your post about shingrix. Take care xx

[Gitaga]

HiI am currently on Amgevita.

40mg fortnightly.

I have no side effects, except an occasional sneeze after taking it🤷‍♂️.

Its just over 2 months now since I'm taking it.

I still have to rely on prednisone occasionally and Rhemalef daily.

I was told that it should work after 3 months.

Just to say I did notice reduce in swelling around my joints.

[pineapple_head]

Hi, I've been on Amgevita for nearly 3 years. The usual dose is 40mg every other week. I don't have any side effects whatsoever. The only issue is doesn't last the whole 2 weeks. So on the 2nd week, I need to take pain killers and anti inflammatory.

[LeafyLytham]

I am injecting myself every 2 weeks with 40mg Amgevita, began only 6 weeks ago. I felt a positive difference within 3 hours!Gone is the agony of stiffness, almost no pain and joints feel relieved.

My blood tests show ESR and CRP are within normal range for the first time in 6 years. I feel like a new woman and hope that this continues after years of trying other DMARD's .

[Mistydawn in reply to LeafyLytham]

Wow, that's promising! I'm just concerned as I suffer from vertigenous migraines and one of the listed side effects of amgevita is dizziness and 'room spinning" which are the same as my migraines so am concerned it may trigger the migraines,

[helixhelix in reply to LeafyLytham]

How wonderful!!

[CagneysMum]

Same as LeafyLytham’s experience. Diagnosed with RA just over 3 years ago. Went downhill very quickly from excellent health to every joint inflamed including my jaw… and needing wheelchair assistance. I began taking methotrexate and hydroxychloroquin and then added 40mg (fortnightly) Amgevita injection about 18 months ago and felt pain free within 24 hours of first injection. It didn’t last the whole fortnight to begin with but settled down after a couple of months and I’m now almost pain free all of the time. Still get tired/fatigued more easily and some pain if I overdo things but I am 60 🤷‍♀️ No side effects that I’m aware of and nothing suspicious showing up in regular blood tests. Have even recently been able to reduce methotrexate dose. Long may it continue 🤞🤞

[Mistydawn in reply to CagneysMum]

That's great news about you being pain free and having your lift back. Thank you for the feedback

[Leics]

Haven’t tried or been offered it but just wanted to wish you luck and hope that it’s the ‘one’ for you. I hope the side effects are non existent but if you don’t try you’ll never know that’s what I tend to think. Fingers crossed you do very well on it and don’t have the dizziness or migraine’s which you’re quite right to be nervous about.

[Mistydawn in reply to Leics]

Thank you Leics for the support and encouragement. It's always a scary time starting a new med!

[Leics in reply to Mistydawn]

Yeah I get it. I’m currently not on any meds and in agony just got an appointment for October by telephone any ideas what I do until then ? Any suggestions answers on a postcard please. Sorry not your problem I’m a bit fed up atm.

[Mistydawn in reply to Leics]

Leica, that’s shocking. Could your GP put pressure on the consultant to see you sooner? Have you tried contacting the Rheumatology Helpline? Contact the consultants secretary and see if she can help.

Hoping you get help soon! Take care

[Leics in reply to Mistydawn]

Thanks that’s how I managed to get an appointment last week but although the depo I begged for is helping a little I’m going to be on my knees again by October and they can’t see me on the phone. It’s just I would like some meds to help but they just won’t sort it for some unknown reason. Good job I’m strong haha.

[helixhelix]

Started 40mg every two weeks at end April (long story, I posted about it yesterday).

Injections less “stingy” than Enbrel and zero side effects.

Sadly zero positive effects either! I am on week 8 and agreed with rheumy to stick it out for the full 3 months, but am beginning to lose hope!

But some people have told me it took the full three months, so I hold on to that thought.

[Mistydawn in reply to helixhelix]

Okay, perhaps I could start it and see how I go. Take care. Hope it works soon x