Well bit the bullet and increased my steroids again! So my rib pain was coming back then I developed really really severe lower back pain and across the hips. Three days later they all feel a good bit better.
Great I thought and woke up this morning with yet another huge abscess, blood sugars starting to go up again me thinks! So insulin up. Blooming roundabout lol.
But I got a letter saying I could go to the wheelchair services for my chair and listing all the options. I was totally unaware there were options ! So you can get one they give you free and they maintain it. You can choose one of five and pay towards it and they maintain it, but they still own it. Or you can buy your own! Fair do's! So I think option one for me As it will help me get out and about and there's no way I could self propel it with my shoulders wrists elbows etc. Then if it helps I will look into a scooter but one step at a time cos I'm still SURE they will get a drug to suit me, and I did have a couple of good days after my Abatacept ( until the pain worsened again lol)
Hoping you all good! X A