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Abatacept
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Abatacept
Hi I was wondering if anyone else has been told that they have got to have infusions of these at home because of stock problems? If so, have you started them yet? Thank you
Hi I was wondering if anyone else has been told that they have got to have infusions of these at home because of stock problems? If so, have you started them yet? Thank you
debjw
in
NRAS
14 days ago
Abatacept infusions
As many others on
Abatacept
will know we are swapping onto infusions due to shortages. Lloyds called me on Monday evening regarding swapping & went through the usual personal questions then asked how many I had left at which point we lost the connection.
As many others on
Abatacept
will know we are swapping onto infusions due to shortages. Lloyds called me on Monday evening regarding swapping & went through the usual personal questions then asked how many I had left at which point we lost the connection.
Otto11
in
NRAS
14 days ago
Abatacept Shortage?
Hi, I've been on
abatacept
since last year as a subcutaneous injection weekly at home. I've had a message from Lloyds Homecare who provide it saying that the manufacturer has let them know of an imminent shortage. Lloyds are going to provide it by infusion at home instead.
Hi, I've been on
abatacept
since last year as a subcutaneous injection weekly at home. I've had a message from Lloyds Homecare who provide it saying that the manufacturer has let them know of an imminent shortage. Lloyds are going to provide it by infusion at home instead.
Gillybob19
in
NRAS
23 days ago
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Abatacept problem
I have been started on
Abatacept
with one lesson in its use. The next one to check I could cope was cancelled three weeks ago and I have not heard from the company so I have missed the doses. I have rung them and they have promised an appointment but not given one.
I have been started on
Abatacept
with one lesson in its use. The next one to check I could cope was cancelled three weeks ago and I have not heard from the company so I have missed the doses. I have rung them and they have promised an appointment but not given one.
Shonkie
in
NRAS
2 months ago
Abatacept shortage
I posted a couple of weeks ago that I was going to start
Abatacept
as the Tocilizumab didn’t work 🙄. My consultant has contacted me to say there is a national shortage so I’m to start JAK inhibitor tablets instead. Has anyone had good results with these please? 🙏🏻
I posted a couple of weeks ago that I was going to start
Abatacept
as the Tocilizumab didn’t work 🙄. My consultant has contacted me to say there is a national shortage so I’m to start JAK inhibitor tablets instead. Has anyone had good results with these please? 🙏🏻
Hiphopsix
in
NRAS
2 months ago
Ongoing Abatacept Saga
So following on from recent posts about shortage of clickjets and being offered infusion until sorted - today I've received my first 3 dates for infusions starting on .............. 20 August which means almost another 2 months of continual pain and stiffness - but hey be grateful for small mercies I
So following on from recent posts about shortage of clickjets and being offered infusion until sorted - today I've received my first 3 dates for infusions starting on .............. 20 August which means almost another 2 months of continual pain and stiffness - but hey be grateful for small mercies I
nanny_bee71
in
NRAS
4 days ago
Abatacept shortage of clickpens and pre-filled syringes - Lloyds Clinical Homecare website information.
https://lpclinicalhomecare.co.uk/orencia-pen-shortage/ Has anyone on here ever changed from IV
Abatacept
to sub-cut to find it wasn’t as effective? Concerned about the eventual change back.
https://lpclinicalhomecare.co.uk/orencia-pen-shortage/ Has anyone on here ever changed from IV
Abatacept
to sub-cut to find it wasn’t as effective? Concerned about the eventual change back.
Neonkittie17
in
NRAS
8 days ago
Abatacept injection issue. Help
Hi of all times for this to happen whilst up I’m waiting for my infusion dates. I went to do my injection this morning into my tummy as usual & as I’ve lost fat on my stomach lately the pen wouldn’t push hard enough into my stomach to inject. I tried again & my grip wasn’t good & although the pen worked
Hi of all times for this to happen whilst up I’m waiting for my infusion dates. I went to do my injection this morning into my tummy as usual & as I’ve lost fat on my stomach lately the pen wouldn’t push hard enough into my stomach to inject. I tried again & my grip wasn’t good & although the pen worked
Otto11
in
NRAS
4 days ago
Replacing Belatacept with Abatacept
He told me to hold off on that decision for now as in the future it may be possible for me to switch to a similar drug,
Abatacept
, which is a weekly injectable. Huh. I did some research and found a few studies that are indeed looking at this.
He told me to hold off on that decision for now as in the future it may be possible for me to switch to a similar drug,
Abatacept
, which is a weekly injectable. Huh. I did some research and found a few studies that are indeed looking at this.
Oceansideup
in
Kidney Transplant
7 days ago
Travel refrigeration
Hi, I am travelling to Cuba in April and need to take 2
abatacept
injections with me. Has anyone got any experience with this and how to overcome this obstacle. HELP!!!!
Hi, I am travelling to Cuba in April and need to take 2
abatacept
injections with me. Has anyone got any experience with this and how to overcome this obstacle. HELP!!!!
Djohnston1971
in
NRAS
5 months ago
Abatacept update from last week
Hi Just an update after my call a week ago from Lloyds got cut off half way through them calling me about transferring to infusions. Well after waiting a week & no call back I decided to call them yesterday. The lady I spoke to said there was no record of anyone calling me last week🤷🏻♀️ & even asked
Hi Just an update after my call a week ago from Lloyds got cut off half way through them calling me about transferring to infusions. Well after waiting a week & no call back I decided to call them yesterday. The lady I spoke to said there was no record of anyone calling me last week🤷🏻♀️ & even asked
Otto11
in
NRAS
8 days ago
Abatacept
Good morning, I have been on Rituximab for a number of years , but having a really bad side effects now , saw Rhuemy a few weeks ago and she said that I might be switched to
Abatacept
.
Good morning, I have been on Rituximab for a number of years , but having a really bad side effects now , saw Rhuemy a few weeks ago and she said that I might be switched to
Abatacept
.
Jillyanne
in
NRAS
7 months ago
Teeth dam teeth
THEN the dreaded toothache and had to come of methotrexate and
Abatacept
2 weeks before and 2 weeks after because of no appointments it ended being 6 weeks....... I'd started to feel a bit better and have now got a very painful tooth on the otherside of my face.
THEN the dreaded toothache and had to come of methotrexate and
Abatacept
2 weeks before and 2 weeks after because of no appointments it ended being 6 weeks....... I'd started to feel a bit better and have now got a very painful tooth on the otherside of my face.
Pasjc
in
NRAS
2 months ago
Bronchiectasis and biologics
I have had a number of chest infections in the last year and was given a rather scary warning about the dangers of this while on
Abatacept
. What experience have other people had please?
I have had a number of chest infections in the last year and was given a rather scary warning about the dangers of this while on
Abatacept
. What experience have other people had please?
Shonkie
in
Lung Conditions Community Forum
5 months ago
Frustration
Following on from the post a couple of days ago regarding the shortage of
abatacept
and the link to the National Patient Safety Alert regarding shortages, I phoned our local rheumy help line. Initially, I was number 14 in the queue but decided to hang on.
Following on from the post a couple of days ago regarding the shortage of
abatacept
and the link to the National Patient Safety Alert regarding shortages, I phoned our local rheumy help line. Initially, I was number 14 in the queue but decided to hang on.
nanny_bee71
in
NRAS
21 days ago
abatacept
hello, I’m about to start
abatacept
(Orencia) and would like to know if anyone here uses
abatacept
in a prefilled pen. My gp seems to think it only comes as an infusion or as a prefilled syringe but I’m sure I have seen it referred to on fb as a pen.
hello, I’m about to start
abatacept
(Orencia) and would like to know if anyone here uses
abatacept
in a prefilled pen. My gp seems to think it only comes as an infusion or as a prefilled syringe but I’m sure I have seen it referred to on fb as a pen.
Emye343
in
NRAS
8 months ago
Abatacept
Does anybody know how long
abatacept
can be out of the fridge and still be useable? Thanks.
Does anybody know how long
abatacept
can be out of the fridge and still be useable? Thanks.
MerielPB
in
NRAS
9 months ago
Abatacept and coming off prednisolone
Also is anyone else on
Abatacept
and roughly how long did it take for them to work? I know they’re both open ended questions but just as a guide. Thank you x
Also is anyone else on
Abatacept
and roughly how long did it take for them to work? I know they’re both open ended questions but just as a guide. Thank you x
debjw
in
NRAS
9 months ago
When to restart Biologics after Covid Infection
Should have injected
Abatacept
at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting biologics after Covid infection and Antiviral treatment? Is it the usual post infection rule of “when you feel better”?
Should have injected
Abatacept
at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting biologics after Covid infection and Antiviral treatment? Is it the usual post infection rule of “when you feel better”?
Intheend
in
NRAS
7 months ago
ra associated eye ulcers
I’m into my second month of
abatacept
injections which don’t seem to be helping yet. I was off all medication for 3 months after open heart surgery in the summer caused by a toxic reaction to leflunomide which had seriously worsened my congenital bicuspid aortic valve .
I’m into my second month of
abatacept
injections which don’t seem to be helping yet. I was off all medication for 3 months after open heart surgery in the summer caused by a toxic reaction to leflunomide which had seriously worsened my congenital bicuspid aortic valve .
Emye343
in
NRAS
6 months ago
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