Experiences with

Abatacept

After a long wait, I had my first infusion yesterday. All went OK until they removed the cannula which somehow got stuck, the result of which has left me with a very nasty bruise which is not looking to good this morning so will have to keep an eye on it. Just waiting for the magic to work now to

The researchers tested abatacept, a drug used for arthritis that modulates T cell response. They found that abatacept reduced Th17 cells in the brain, improved motor function, and protected dopamine-producing nerve cells in the mice.

I have one more infusion in 2wks time before I am suppose to go onto the home delivery of pens.Has anyone experienced this when first starting ABATACEPT and how long before it takes effect to help with my pain. xx

I am nervous about starting Abatacept on Monday as there is no guarantee its going to work but I am trying to be positive. Has anyone changed from Toci to Abatacept and its been a positive ?outcome

Hi I was wondering if anyone else has been told that they have got to have infusions of these at home because of stock problems? If so, have you started them yet? Thank you

I’m also on abatacept too

I have found today that I cannot obtain Abatacept as both the epipens and the drug are in short supply or in my case unobtainable. No idea what next, I await my rheumy’s reply to my email, Umm!

Started on Abatacept infusions back in August due to shortage of pens but at long last they are back in circulation again. Had message from healthnet homecare re first delivery which is arranged for next Thursday then have to wait for nurse to visit to show me how to use them.

As many others on Abatacept will know we are swapping onto infusions due to shortages. Lloyds called me on Monday evening regarding swapping & went through the usual personal questions then asked how many I had left at which point we lost the connection.

Hi, I've been on abatacept since last year as a subcutaneous injection weekly at home. I've had a message from Lloyds Homecare who provide it saying that the manufacturer has let them know of an imminent shortage. Lloyds are going to provide it by infusion at home instead.

Hi everyone who responded to my last few posts regarding starting infusions. I had a call yesterday from Lloyds ( most likely because my Rheumy Nurse had sent them an e mail) to arrange a delivery of the infusion fluid & cannulas. I had expected a date for the infusion but the lady knew nothing about

Annoyed to say the least 😡 I have had infusions for the last 3 months due to the shortage of pens like many of us. My next one is due on Sunday. Heard nothing from Lloyd’s so called about 10 days ago to be told I will be going back to pens now. That’s good but they said they had no prescription for

So following on from recent posts about shortage of clickjets and being offered infusion until sorted - today I've received my first 3 dates for infusions starting on .............. 20 August which means almost another 2 months of continual pain and stiffness - but hey be grateful for small mercies I

Due for infusion on Tuesday.Is there anyone who has had it who experienced side effects.I would appreciate your answers as I am concerned it will make me ill before I go on holiday three days later

Hi all of you who have been helping me sort out my swap to infusions. Well my delivery arrived as planned this morning. 2 great big boxes! Wasn't expecting that. The guy who delivered it chatted for a while & said there had been quite a few hiccups in organising everything. He said if I hadn't heard

I have been started on Abatacept with one lesson in its use. The next one to check I could cope was cancelled three weeks ago and I have not heard from the company so I have missed the doses. I have rung them and they have promised an appointment but not given one.

I posted a couple of weeks ago that I was going to start Abatacept as the Tocilizumab didn’t work 🙄. My consultant has contacted me to say there is a national shortage so I’m to start JAK inhibitor tablets instead. Has anyone had good results with these please? 🙏🏻

https://lpclinicalhomecare.co.uk/orencia-pen-shortage/ Has anyone on here ever changed from IV Abatacept to sub-cut to find it wasn’t as effective? Concerned about the eventual change back.

My delivery of four Abatacept pre-filled syringes arrived today on time as arranged. Then a phone call this afternoon from the hospital pharmacy technician to say that the pens will be back in supply sooner than anticipated, in September.

Hi of all times for this to happen whilst up I’m waiting for my infusion dates. I went to do my injection this morning into my tummy as usual & as I’ve lost fat on my stomach lately the pen wouldn’t push hard enough into my stomach to inject. I tried again & my grip wasn’t good & although the pen worked