Experiences with

Abatacept

Hi All thanks for advice regarding Abatacept, I have contacted the rhuemy nurses several times advised to up steroids and wait for review in March . Wishing everyone a better year .

Hi anyone experienced anything similar ,been on Abatacept about two year ,since having my Covid vaccine and antibiotics for chest infection about two month ago I have felt so unwell, I am currently on 20 mg steroids and all I’m experiencing is pain everywhere and burning pain all over body .

I've been advised by my surgeon nit to gave my Abatacept injection for a month before. How can I keep my inflammation as low as possible before surgery. Also for a number of weeks after. Im very concerned. Thanks x

I was started on prednisolone then added methotrexate then sulfasalazine then abatacept. I am now taking all four plus co codamol and naproxen occasionally. I would have expected to be able to function but my hands are still very stiff and painful and am very fatigued.

I currently inject weekly with Abatacept 125mg , Metrotrexate 15mg , plus other meds ie Metformin etc. Any one had this difficulty or could suggest way forward? Thanks

Has anyone been told their abatacept pen will be changed to an injection syringe?

I’ve been on a prednisone taper since, methotrexate and now abatacept.

Hi All A few months ago, my previous treatment for RD, Abatacept was stopped and I was to start Upadicitinib. However, due to this coinciding with a shingles and covid vaccines, I didn't actually start the new medication.

I have Rheumatoid Arthritis and I take hydroxy, methotrexate and abatacept Last week I requested some more naproxen. I don't take a lot if it these days since I started with abatacept so it was a year or more since my last prescription request.

I have been having problems getting my Abatacept delivery from Lloyds recently. Rheumatology hadn't renewed my prescription because I hadn't been reviewed so Lloyds told me they couldn't deliver till they received it. Rheumatology sent the prescription to them 2 weeks ago and so all should be well.

Adalimumab, Etanercept, Certolizumab, Golimumab, Abatacept, Tocilizumab, Sarilumab, JAK inhibitors, Ustekinumab, Secukinumab, Ixekizumab, Guselkumab, Belimumab, Rituximab. Methotrexate, Mycophenolate, Azathioprine, Ciclosporin, Leflunomide, Tacrolimus.

Dear all 🙂 I only just had my first Abatacept injection 4 days ago and have just had the last of a course of steroids, so the immune system is low already (think I have a sinus infection 🙄). Anyhoo….

I have been on biologics for the past 11year(at present abatacept infusions every 4 weeks) & I have had pneumonia vaccination every 5years. I had a reminder from my gp practice that a boaster was due. Made an appointment but nurse wouldn’t give it to me as wasn’t sure about authorisation.

After that I had another biologic with a strange name tocxyxillab or something, that did the same, but Orancia which is abatacept, brilliant, been on it for a year. It's trial and error till you find the right one, so good luck.

I had my 3rd covid vaccination a week ago as have abatacept 4 weekly infusions & was 6 months since my 2nd dose. Had little problems after1st dose & sore arm & tiredness a day after the 2nd dose but this third dose has been very different.

Last week I got a letter from the local NHS commissioning group confirming that abatacept drops me into the severely immune suppressed group which gave me a real wobble.Today my amazingly efficient GP surgery texted offering me a 3rd covid vaccination on 23rd September with a booster to follow 6 months

Hi All ,I am currently on Abatacept since having covid jab I am not getting any relief from injection, anyone else experienced this ?

After months of taking Idacio, my consultant has decided to switch my biologic to Orencia under the brand name of Abatacept. I have no scooby what this biologic is like except that I can not take it out of the fridge for more than 30 minutes.

Abatacept injections kill my T cells that cause RA in me, and many of you. I have had two Astra Zeneca jabs and they pump T cells into the body to fight Covid. So I guess there is a battle going on in me.

Iv been taken off this injection due to having mouth ulcers?