Experiences with

Abatacept

So, 6 months ago I was offered 2 infusions Abatacept or Rituximab, I went for Abatacept as the first thing they told me was the worst side effect that can happen with Rituximab.

After waiting so long for new bio drug, Abatacept, one injection 4 days later a get shingles, also on MTX, which have to be stopped , lve no idea how long for , and whether l should go back on Abatacept when things hopefully settle down, Has anyone else had anything like this, on 5 day of medication

Have to make a decision between 2 drugs, Abatacept or Tocilizumab, not sure what one to choose, does anyone know if Abatacept can be taken without Methotrexate, as l really don’t want to stay on MTX, l know the other one can, thanks for your help Kate .

My rheumatologist wants to put me on Abatacept. Does anyone have any experience of this drug?

I have RA and on abatacept and methotrexate.

Any cheery stories of abatacept please ? 😬😬😬🥰

Hi Anyone have any info on Abatacept and hair loss, well hair thinning? I’ve been on Abatacept for 2 years and it works well but I’ve lost approximately 50% of my hair.

I'm due to start abatacept soon so will hopefully be able to get to see my consultant again then, but I just wondered if anyone else suffers with this and if so have you found anything that helps? Thanks. Best wishes to all.

I've been taking abatacept for about 4 years without any issues, over the last 6 months I've developed a skin rash with patches on most of my torso. Has anyone else had this problem?

It is not clear whether I need to inform the DVLA about the my rheumatoid arthritis or the medications I take which are Abatacept, Methrotrexate & Sulfasalazine. None of these effect my driving & I have been on these medications for some years. I have no adaptations to my car.

Anyone else been told this re an Abatacept pen shortage? Thanks. 💗

I'm worried if I should keep taking Abatacept and Hydroxychloraquine. I've only been on hydroxy for about 3 months I also thought maybe there's a connection has anyone else has similar please

Hi, I am new to this forum and would be grateful if anyone could advise on how long it took biologic Orencia to work. I have been on weekly injections of Orencia now for 6 weeks but not noticing any major improvement with my pain and swelling?

I’ve been 7 weeks off my Abatacept now & really hurting everywhere now. Just wondering how others have coped. Im seeing the Consultant next week & hoping the pins can come out shortly. Does anyone know how they take them out?

I have just started Abatacept infusion and am a bit dizzy will this just wear off? Would appreciate any advice from anyone who has tried or who is on Abatacept thanks 😊

Do you have to stop taking biologic (Abatacept) if you go on wafrin.

I live in Scotland and am Abatacept weekly and daily prednisone.Ty.

I’m on abatacept and to be honest I have more swellings pain and flare ups now it ridiculous so I’ve decided come off for couple weeks and I’ve been fine so far strange but true . So on my phone appointment on 24 let’s see what they av say

Hi All A few months ago, my previous treatment for RD, Abatacept was stopped and I was to start Upadicitinib. However, due to this coinciding with a shingles and covid vaccines, I didn't actually start the new medication.

I’ve been on a prednisone taper since, methotrexate and now abatacept.