Here we go again. Pain in my hands,eyes,my leg as well. I have one good night and then i think great i will be able to do a little bit,i feel great in my head. Then i have another bad night and am downstairs at silly o'clock. Last night was one such night and today i feel absolutely rubbish. My head aches,my eyes ache and they are puffy and dark, my fingers feel like sausages and they are hot. Come tomorrow if i sleep well i will look and feel not too bad. Where's the logic in this b""""y disease. Like others have said on here before,they start
having a few good days and they think its going away and then it comes and bites you on your a""e. No wonder i have depression, had a good cry as well,thank goodness for my hubbys cuddles when i feel like this. He needs an award for putting up with me. He is so lovely.
Well thats my little moan over. I hope you all feel brighter than i do at the moment and we all feel better tomorrow.
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sylvi
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I do know how you feel and I am glad I have lots of cuddles - I have cried buckets this week, but like you say, the sun is shining and that has made me feel a bit better!
Take care and I hope you have a better sleep tonight!
poor sylvi ,really feel for you as i am wide awake writing this at 2.20am no sleep again for me and i not sleeping during day either so i don,t know how i,am coping with no sleep and daily pain, i expect to crash somewhere some how at the weekend! good luck with your knee op hope it means less pain xxx
Oh bless, really hope they get better soon! They just took me off all my ra meds cos of the spine thing so sausage fingers is back. But got a nice french manicure!!!! Axx
I haven't got any nails at the moment due to op on thursday, so everything is going downhill at the moment, what with the ra and the knee i have just about had enough. I haven't had mtx for nearly 5mths now so that doesn't help. I am now going to the bath and then bed,and i hope i wake up tomorrow feeling better than this. So goodnight to all my hu friends and see you in the morning.xx
Poor sylvi. I feel for you lack of sleep makes joint pain worse and joint pain can cause lack of sleep it is vicious circle. thank goodness for your hubby, are you not sleeping because if worry of the op? I Wonder?.. it will be soon over and you can concentrate on recovery and restarting meds and things should improve!
lots of love and hugs xx
Goodnight Sylvi, it is a horrible disease but we all understand exactly where you're coming from. Like Summer says, worrying about the op could be disturbing your sleep right now and adding to your problems. Hope you have a better night tonight.
Take care
Paula x
Just less than a week to go Sylvie, You'll make it, if you quit doing stuff!! Be nice to Sylvie !! Love ya, Loret
Hello Fed Up , I know how u feel I am sure a lot of us do, all I can say, that has helped me is, dont expect too much too fast let your body heal at its own progress be patient and rest, even if u sleep 15 hour during the day, yur body is telling you, I have had enough and this is what i have to do, then on the somewhat good days, enjoy every min of it, for me they are far and few between, but I have learned to make the most of them, NOT OVERDO, Pace yourself, smell the outdoors, Breathe, do something you enjoy, because tomorrow is another day, and you wont know how you will feel xx Hope that helps
Hello Fed Up , I know how u feel I am sure a lot of us do, all I can say, that has helped me is, dont expect too much too fast let your body heal at its own progress be patient and rest, even if u sleep 15 hour during the day, yur body is telling you, I have had enough and this is what i have to do, then on the somewhat good days, enjoy every min of it, for me they are far and few between, but I have learned to make the most of them, NOT OVERDO, Pace yourself, smell the outdoors, Breathe, do something you enjoy, because tomorrow is another day, and you wont know how you will feel xx Hope that helps
Sorry to see you are so down hun, hope you feel better soon i know where you are coming from with the sleep thing i am typing this at 3.22 am. Hope your op goes well for you and glad you have a lovely hubs to give you cuddles when your down, as i do those cuddles are like gold when we have our down days. Big ((Sylvi )) Ladybird x
Morning all, I am up with hubby as he has to go to work. It is 4,50am and not a good night. The early part of the night,sleep was good,since 2.00am not much good at all. Believe it or not,the op isn't bothering me,as at last someone is doing something for me and yes i know it will be b"""y hard going and i will feel worse before i feel better. This is purely the ra/fibro causing me trouble. Yes the knee is playing up,no doubt about that.
After i closed down my laptop last night a friend of mine came round with the avon and all she did was put her arms round in greeting and boy did i break down. I sobbed my heart out in her arms. Thank god i have friends who is as understanding like she is. One cup of tea later and i was managing. I haven't cried like for a long time. It will have helped with the depression side of things anyway. So i have put my eiderdown (lightweight one) in the washing machine, and as its going to be a nice day it will go outside on the line. I might as well put these early mornings to good use.
I am going to the farmers market this morning. i always support that as its a way of helping myself mby meeting people. Yesterday i was in the paper shop and we was talking about my op and ra and she said you don't look ill,in fact her words were you look really well. She knows about this disease so she was understanding of what i'm going through. When i go up the village i will have to take my daughter with me as i won't be able to walk very well with 2 sticks/crutches inside where it is being held. My scooter is too big to go inside.
Chocolate i can do,wine sadly no. If i had been drinking with what i have gone through in the last three years i would have certainly drunk myself to death. No thats not over the top i can tell you,both my parents were alcoholics. The one thing i'm proud to say is that i haven't had a drink in over ten years.
I thank you all for helping me through this episode as this is the worst i've been in a very long time. No mtx has a lot to do with it.
I hope you all ahve a lovely day and you all get out and about as its going to be a nice day today. Make hay while the sun shines.
Hi Sylvi, glad you managed at least a little sleep last night.
The grizzle you had with a friend, that's good as well. Better out than in !
Lastly, Thursday will get here eventually and I do appreciate that the pain and lack of sleep will be making the days (and nights) seem longer (RA is sooo crap !) but think ,,,, it's not just the op. and getting the knee sorted out to look forward to .... they should be able to sort out your meds. afterwards shouldn't they? And what a relief that will be.
Don't go overdoing things between now and Thursday, I know it's tempting to get so much done before an op. ...... but just you make sure that suitcase is packed!
I think the weather forcast is good for this weekend so you go sit in that garden of yours and relax if you can (and dream of all those hunky doctors you will be meeting soon)
Judi,my case has been ready for ages. Mad, no just optomistic. I will hopefully get out in the garden later. Most of the drs are oldish,i'm too long in the tooth at the moment to notice. Anyway i always look at the rear!! first. I try to be upbeat,just not this weekend.
Hope you have a lovely weekend. xx
Take care and a huge cyber hug to you Sylvi. It's sunny up here too but there are many clouds on the horizon. But the forecast for the weekend was dire so it's all a bonus! I will come along with you in spirit on Thursday and will the oldish surgeons etc to do their level best to make your knee a great success. Have a nice time at the farmer's market. TTxx
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Be nice to Sylvie !! Love ya, Loret
Totally fed up
Fed up .
Absolutely fed UP !
