Can you get mouth ulcers when taking methatraxate,my ... - NRAS

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Can you get mouth ulcers when taking methatraxate,my mouth is so sore

Laceygreen profile image
10 Replies
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Laceygreen profile image
Laceygreen
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10 Replies
helixhelix profile image
helixhelix

Yes!!! And they are horrid so I feel for you as they drove me nuts. I starting developing them several years after starting MTX. Phone your helpline to ask about taking more folic acid, and try using mouthwashes like Eludril as that soothes. Those things worked for a while, but In the end the thing that really helped me was swapping to injectable MTX. The all went away within about 2 weeks, and (touch wood) they haven't returned.

Trulyfedup profile image
Trulyfedup

Hi, yes,honey I'm on MTX injections and go through bouts of having them I also have the burning mouth syndrome...it's all horrible..I use corsododyl and when the mouth is on fire I suck an ice cube....I'm sorry to hear you having these side effects...the complaint is bad enough without any added extras..if you decide to use bonjela be prepared to jump through your roof!!! Maryxxx

MarshaM profile image
MarshaM

Taking Folic acid is supposed go help prevent that.

Shell1967 profile image
Shell1967

I have suffered with mouth ulcers and cold sores frequently since starting oral mtx 15 mg. I eventually rung my rheumy nurse who suggested another day off folic acid.so now I have my mtx on Mondays and folic acid tues and thur and I am much better. Hope this helps michelle x

abannister profile image
abannister

I was put on folic acid every day except my mtx Friday and so far have escaped them.

oldtimer profile image
oldtimer

Unfortunately these can be a real problem with MTX. I used Orobase (can be bought over the counter, but also on prescription) which sticks to moist surfaces to protect them. I also found that keeping my mouth squeaky clean helped with the pain - using a mouth wash and cleaning my teeth really carefully. The dentist was very concerned that I had such large ulcers and advised me to change my medication!

Hoping4GoodHealth profile image
Hoping4GoodHealth

Yes, yes, yes ! I'm so sorry. I had terrible mouth sores from Methotrexate pills and yet now I take MTX injections and no mouth sores. It seems crazy. My Dr called into the Pharmacy a liquid mouth rinse to help the sores go away. I think it was called Nystaten. I hope you find the med that will help you the most without side effects.

Take Care !

Valent48 profile image
Valent48

Hi all, I'm on Hydroxy and am sure MTX will be on the cards in the future....are we able to have the inj straight away, it seems oral meds are not tolerated at all?

aliCat profile image
aliCat

Folic acid is the magic treatment and the right level will get that sorted out.

pm52 profile image
pm52

Hi there, I take 5mg folic acid every day apart from MTX day and that pretty much seems to stop the mouth ulcers. My Rheumatologist advised to take it 6 days a week rather than once or twice as it does seem to protect you against ulcers. I very rarely get them now.

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