Posts - Non Hodgkin's Lymphoma Friends | HealthUnlocked

Non Hodgkin's Lymphoma Friends

1,772 members • 799 posts

All posts for March 2017

Acupuncture update

I had my first acupuncture treatment for chronic back and neck pain. It went well, but I did have an increase in pain about an hour later. Rested the remainder...

I had my first acupuncture treatment for chronic back and neck pain. It went wel...

•7 years ago

Question re Exercise?

Leading on from jamoza's 5 Alive Challenge - has anyone taken up any form of exercise since their diagnosis with NHL and if so how do you believe it has helped...

Leading on from jamoza's 5 Alive Challenge - has anyone taken up any form of exe...

Volunteer•7 years ago

My 5alive Challenge

I am taking on the challenge of running 5 marathons on successive days, starting with the London Marathon on April 23rd. This is with the aim of raising over...

I am taking on the challenge of running 5 marathons on successive days, starting...

•7 years ago

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Check out the VA's eligible cancers for disability qualification.

FYI...If you are a veteran, you need to check out the latest cancers that are on the list to qualify for disability. NHL is now on the list plus others.

FYI...If you are a veteran, you need to check out the latest cancers that are on...

•7 years ago

How many ways to do battle?

I'm a "non-Hodgkin survivor" who lives in Canada and receives the best health care anyone could wish for. I visit this forum every few days to see if anyone...

I'm a "non-Hodgkin survivor" who lives in Canada and receives the best health ca...

•7 years ago

Need a little clarity..T cell histiocyte rich B cell lymphoma

I feel like a bit out of place as I'm not a lymphoma suffer. I have a younger brother in his 30s who was diagnosed with: T cell histiocyte rich B cell...

I feel like a bit out of place as I'm not a lymphoma suffer. I have a younger br...

•7 years ago

Receiving disabilty?

Hello. I was diagnosed with stage III nodal marginal zone NFL (Oct 16) and fibromyalgia (2014). I haven't worked for over two years, I applied for Social...

Hello. I was diagnosed with stage III nodal marginal zone NFL (Oct 16) and fibro...

Calipewings_2016

•7 years ago

Treatment

Hi, has anyone been given a combination of bendamustadine and rituximab as a maintenance treatment? I have read that this can prolong remission further than...

Hi, has anyone been given a combination of bendamustadine and rituximab as a mai...

•7 years ago

Vitamin D and NHL

Has anyone had their Vit D levels tested since diagnosis? I intend to ask my oncologist about that at my next appointment as I'm reluctant to take a supplement...

Has anyone had their Vit D levels tested since diagnosis? I intend to ask my onc...

Volunteer•7 years ago

Sharing about NHL and common residence

I've been on this site for a few months, and am very happy to be able to listen to and to share with others with NHL. There is a comfort knowing others with a...

I've been on this site for a few months, and am very happy to be able to listen ...

•7 years ago

Aggressive B Cell then Marginal Zone

I wad diagnosed first with Aggressive B Cell and 2 years later Marginal Zone. I had the Chop with 6 rounds, then 2 more. I still had in bone marrow. I had 6...

I wad diagnosed first with Aggressive B Cell and 2 years later Marginal Zone. I ...

•7 years ago

Cancer Back again

I saw my DR again yesterday and I was in full remission after doing R-EPOCH and finishing in December. By the end of February, I had night sweats again, strong...

I saw my DR again yesterday and I was in full remission after doing R-EPOCH and ...

•7 years ago

After effects after chemo

I finished chemo on December 23rd.. so almost done 3 months. I have extreme fatigue and am having a problem eating. I feel like I can't do anything and I...

I finished chemo on December 23rd.. so almost done 3 months. I have extreme fati...

•7 years ago

Side effects ???

HI I am in maintenance rituximab treatments every eight weeks until November or December of 2017 ( 24 months total). I was diagnosed with Follicular Lymphoma...

HI I am in maintenance rituximab treatments every eight weeks until November or ...

•7 years ago

Monday question

Hi everyone, as it's Monday I thought I would ask a question. Has anyone received any interesting nuggets of general information re lymphoma management or...

Hi everyone, as it's Monday I thought I would ask a question. Has anyone receive...

Volunteer•7 years ago

Found my blood test not sure

Hi everyone, I have results from my rheumatologist and the kappa light chain is 33.94 should be in the range of 3.3 - 19.4. Monoclonal band 8g/l in the gamma...

Hi everyone, I have results from my rheumatologist and the kappa light chain is ...

•7 years ago

Time frane

Good morning, I don't want to sound negative by asking this question but anyone that was on watch and wait, I'm wondering how quickly did you relapse if you...

Good morning, I don't want to sound negative by asking this question but anyone...

•7 years ago

Back to work on Monday - Whaaaah!

Hi Folks, well the time is nigh. Back to work on Monday and my wet room is nearly finished now that I have micro-managed the tradesmen. Stresssy! I've been...

Hi Folks, well the time is nigh. Back to work on Monday and my wet room is nearl...

•7 years ago

2 year advanced stage diffused lg b cell non Hodgkin's survivor

Does the fear of recurrence go away?

Does the fear of recurrence go away?

•7 years ago

Waldenstroms

Wondering if anyone has Waldenstroms macroglobulinimia a form of NHL..There is a Candian foundation for people with this form of cancer...It is very...

Wondering if anyone has Waldenstroms macroglobulinimia a form of NHL..There ...

•7 years ago

Peripheral neuropathy

Hello, I am new here. I was diagnosed with Bcell lymphoma 5 yrs ago and have NAD after 9 months of RCHOP treatment. I see my oncologist for blood work and a...

Hello, I am new here. I was diagnosed with Bcell lymphoma 5 yrs ago and have NA...

Cherylonthedock

•7 years ago

A bit confused about the bone marrow biopsy results. Trying to find answers

Hi, I am new to all this. My name Mary and I live in rural Victoria Australia. I have got my results from a bone marrow biopsy. It states that the (results are...

Hi, I am new to all this. My name Mary and I live in rural Victoria Australia. I...

•7 years ago

The fight of my life

I am a 65year old male, I was battling Mediastinal largeB cell lymphoma, all of 2016. I began having symptoms the last few months of 2015. Terrible night...

I am a 65year old male, I was battling Mediastinal largeB cell lymphoma, all of...

•7 years ago

First Check-up after diagnoses

Just had my first 3 monthly check up after blood test and CT scan. My Haematologist noted very slight change in 1 or 2 lymph nodes but so minor he feels they...

Just had my first 3 monthly check up after blood test and CT scan. My Haematolog...

•7 years ago

Cold sores

Hi does anyone suffer from cold sores since having treatment ? I had none all the time I was receiving chemotherapy now they won't go away ! What can I do ?

Hi does anyone suffer from cold sores since having treatment ? I had none all t...

•7 years ago

Unsure

Hi everyone..my Son of 23yr old is just being diagnose with NHL😢 we are a very small family that lives in Australia after we migrated from South Africa. He is...

Hi everyone..my Son of 23yr old is just being diagnose with NHL😢 we are a very ...

•7 years ago

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