Vitamin D and NHL

[Shar0n]

Has anyone had their Vit D levels tested since diagnosis? I intend to ask my oncologist about that at my next appointment as I'm reluctant to take a supplement if not needed. I wonder has Vit D status any relevance for the development of NHL?

[Josie2rulrs]

My vitamin D has been low for a while I take 2,000 a day and sometime take double the dose....its been low before I got diagnosed also.

I also take supplements of Iodine since ive read that Iodine help lymphoma....

[Shar0n Volunteer in reply to Josie2rulrs]

I take a kelp supplement to support thyroid - just the rda of iodine as my GP hovers with the thyroxine when my TSH rises and I don't want to do anything to rev up my NHL . I didn't know iodine was useful for Lymphoma though - that's interesting.

[Glenmeadow]

My vitamin d was low for a decade before my diagnosis, as low as 12 when normal started at 40. I think there must be some correlating absorption problem

[Shar0n Volunteer in reply to Glenmeadow]

Definitely worth getting it tested then.

[Merrymary in reply to Glenmeadow]

Me too! Interesting.

[jmcobb50]

My primary care doctor checked my Vitamin D level and it was low. He prescribed Vitamin D 2000 IU a day. Honestly I don't know if there is a correlation with NHL. So many people are deficient these days. I was under a lot of stress, sleep deprived and eating poorly and feel that could have influenced the disease.

[Shar0n Volunteer in reply to jmcobb50]

Yes all of the other things you mentioned - stress, sleep deprivation and poor diet applied to me too. I think I was lazy about my diet because I was lucky enough to maintain normal weight while eating quite a lot of carbs which I now know was not good at all. There seems to be a greater incidence of FNHL in the Northern hemisphere so maybe less Vit D plays a role too.

[Josie2rulrs in reply to Shar0n]

and don't put anything on lawns, no pesticides, herbicides..

[Dlindquist54]

I had mine checked after diagnosis and I was really low. I've been on the therapeutic dose once a week along with multivitamin for a couple years now and I still run low but I'm within normal limits with the therapeutic dose. Low in the range. When I got a new doctor she prescribed a therapeutic dose before she saw I was already on a therapeutic dose. Lol

[BelindaTupper]

I haven't had my Vit.D levels tested, but I've been taking vitamin D supplements for years, even before the NHL diagnosis. It always made me feel better, so I kept it up. I've told the Hematology Clinic nurse about it and she didn't comment, so I figured it wasn't a concern. It would be good to know, though, whether it is something to do...or to avoid. Keep us posted if you hear anything definitive.

[wmay13241]

We live in Northern Virginia. My wife's Vitamin D was 33.6 ng/mL (normal range is 12-80). Her oncologist/hematologist prescribed Vitamin D 400 IU/day. I've read that this "normal range" is too low - anyone have any info on what is should be?

[Pollynic]

My vit D was extremely low i now take a daily supplement

I had to request a blood test for vit D