Posts - Non Hodgkin's Lymphoma Friends | HealthUnlocked

Non Hodgkin's Lymphoma Friends

1,773 members • 799 posts

Non-Hodgkin Lymphoma posts

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Half (3 areas) of my cancer cells are gone!!!!

Hello! I want to share some good news. I am on Watch and Wait. I only do non traditional practices like eating cactus, ginger, tumeric, green drinks (celery,...

Hello! I want to share some good news. I am on Watch and Wait. I only do non tra...

•2 years ago

New Mermber w MCL strating rescue treatment w Calquence

Hi, Im new here I have MCL, started my treatment w Benedustine + Rituximab for 6 Qts, then only Rituximab every two months for 24 months, ended on Feb 2021 w...

Hi, Im new here I have MCL, started my treatment w Benedustine + Rituximab for 6...

•2 years ago

Immunotherapy for NHL

Has anyone used Immunotherapy for non Hodgkin Lymphoma? If so what kind, how long, results. Thanks.

Has anyone used Immunotherapy for non Hodgkin Lymphoma? If so what kind, how lon...

•2 years ago

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CAR-T questions

Hello, I am new to this community and I am fighting cancer, non Hoskins lymphoma. I have a great Oncologist at Ironwood Cancer and research center and he has...

Hello, I am new to this community and I am fighting cancer, non Hoskins lymphoma...

AZ426MoparLover

•2 years ago

Bendamustine & Rituximab remission?

How long did it lasted for you? I’m 7 months out & gastric symptoms are coming back.

How long did it lasted for you? I’m 7 months out & gastric symptoms are coming b...

•3 years ago

Covid Vaccination Acalabrutinib

The procedure that was successful for me: hold acalabrutinib 2 days before and five days after vaccination. Antibodies verified: by T test and standard test...

The procedure that was successful for me: hold acalabrutinib 2 days before and f...

•3 years ago

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Best Vitamins

Hi I have non hodgkin lymphoma does any one know which are best vitamins to take?

Hi I have non hodgkin lymphoma does any one know which are best vitamins to take...

•3 years ago

Update after 6th RCHOP for follicular NHL

Hi, I had my PET scan last week after my 6th cycle of RCHOP. It came back clear with not activity, so I'm officially in now in remission! Have to get a shot of...

Hi, I had my PET scan last week after my 6th cycle of RCHOP. It came back clear ...

•3 years ago

Help with Non Hodkin’s Lymphoma

Hello I’m new here. I have just started a new regimen of treatment for Follicular Lymphoma. The first regimen R-CHOP got rid of the lump in my groin but...

Hello I’m new here. I have just started a new regimen of treatment for Follicula...

•3 years ago

NHL, Cell B, Follicular, Stage 4

Covid 19 has changed all my plans. I made one trip to Tijuana to discuss alternative treatment. I could not return in June because of Covid. I also cannot...

Covid 19 has changed all my plans. I made one trip to Tijuana to discuss alterna...

•4 years ago

Chemo effects

Hi, 49 year old, been on watch and wait for 2 and a half years, but now have a very large node in groin. Anyway, I have to get some treatment, namely chemo...

Hi, 49 year old, been on watch and wait for 2 and a half years, but now have a ...

•4 years ago

NEW TREATMENT: RITUXIMAB AND BENDAMUSTINE

Hello, After Ibrutinib stopped working for my partner, he will now be embarking on a new treatment. Rituximab and Bendamustine chemotherapy combination....

Hello, After Ibrutinib stopped working for my partner, he will now be embarkin...

•4 years ago

NHL - Watch and Wait

I have been diagnosed in July 2015 with NHL stage 1...Im on watch and wait... Thank God all has been good. go to oncologist every 4 months for blood work....

I have been diagnosed in July 2015 with NHL stage 1...Im on watch and wait... Th...

•4 years ago

HEDGE BALLS, APPLES, OSAGE ORANGE

Hedge Balls, Hedge Apples, Orange Osage..these are all names for the same item; ugly, notty, rough, round balls grows on trees. It is said to contain...

Hedge Balls, Hedge Apples, Orange Osage..these are all names for the same item;...

•4 years ago

ALTERNATIVE TREATMENT

I have been investigating alternative/functional cancer treatment. My test last week showed that two areas have decreased. I am feeling fairly good most days,...

I have been investigating alternative/functional cancer treatment. My test last ...

•5 years ago

CBD Oil for ?Non Hodgkins Lymphoma Stage 3

So we were truly shocked at the biopsy that the doctors did to my mother. She has Lymphoma and i didn't really wanna believe it. She was still very much happy...

So we were truly shocked at the biopsy that the doctors did to my mother. She ha...

•5 years ago

Stage 4 Follicular Non Hodgkins on Keto Diet

I wonder if anyone out there is also doing this. I am taking supplements and following it as closely as possible. I have just started a short time ago and am...

I wonder if anyone out there is also doing this. I am taking supplements and fol...

•5 years ago

Stage 4 Follicular Non Hodgkins on Keto Diet

I am wondering if anybody else is doing this. I had CHOP chemo now on Maintenance and have been troubled with sweats still not as bad as the initial ones but...

I am wondering if anybody else is doing this. I had CHOP chemo now on Maintenanc...

•5 years ago

NHL, STAGE 4, CELL B

Ok. , NHL, follicular, slow growing on WW. 5 months and 5 days on CBD. I was pleased with an average of 4-5 good days a week because all days were without...

Ok. , NHL, follicular, slow growing on WW. 5 months and 5 days on CBD. I was ple...

•6 years ago

How long and often should one have scans?

I was diagnosed with NHL the end of 2014 started R-Chop in Jan 2015. and ended with Radiation. Sometimes I wonder if I was mis diagnosed because mine started...

I was diagnosed with NHL the end of 2014 started R-Chop in Jan 2015. and ended w...

•6 years ago

4 months + 12 days

Still on WW and doing alternative treatment. Last week I felt very normal and energetic for 3 days. Today I have a lot of fluid in my thighs and more than...

Still on WW and doing alternative treatment. Last week I felt very normal and en...

•6 years ago

Cannabis Oils - Best Ones for T-Cell Relapse?

I am wondering if anyone can help point me in the right direction, we are at a loss. My father in law has had a relapse of NHL - TCell 2 years after a bone...

I am wondering if anyone can help point me in the right direction, we are at a l...

•6 years ago

100th Day.

100TH DAY OF ALTERNATIVE TREATMENT. ADDED INFRARED SAUNA AND LYMPHATIC MASSAGES.

100TH DAY OF ALTERNATIVE TREATMENT. ADDED INFRARED SAUNA AND LYMPHATIC MASSAGES....

•6 years ago

Kivi

I am new here. I was treated for small cell lymphoma and raynauds ( two diseases) With rituxin, blood transfusions (warmed blood), steroids, I am good now...

I am new here. I was treated for small cell lymphoma and raynauds ( two diseases...

•6 years ago

Going Gluten Free

I am in the process of going gluten free, dairy free, and sugar free in order to reduce inflammation in my body. It has always seemed like a herculean task...

I am in the process of going gluten free, dairy free, and sugar free in order to...

•6 years ago

Advice on Diet and supplements to keep in remission

Hello, peace and health to all. This is my first day on this wonderful site. I was diagnosed with Mantle Cell Lymphoma in July 2015 and underwent RCOP and...

Hello, peace and health to all. This is my first day on this wonderful site. I...

•6 years ago

60 Plus Days, CBD & IP6 /INOSITOL

Almost back to normal. So grateful for God's Natural Products.

Almost back to normal. So grateful for God's Natural Products.

•6 years ago

Update: 7-20-2018 Stage 4 follicular Non-Hodgkin's Lymphoma

Tomorrow is my 60th day of taking CBC and the last 30 with 3% of THC. 60 DAYS OF IP6/INOSITOL. A BIG STEP FOR ME BUT GLAD I TOOK THE RISK. MONDAY THE DR....

Tomorrow is my 60th day of taking CBC and the last 30 with 3% of THC. 60 DAYS OF...

•6 years ago

40+ days of CBD& IP6 WITH INOSITOL

My symptoms were so much improved i could accomplish a few task. Spent a lot of time keeping a dosing schedule and noting outcomes. I have began with CBD/.3%...

My symptoms were so much improved i could accomplish a few task. Spent a lot of...

•6 years ago

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Need advice on taking IP6 AND CBD FOR stage iv FNHL

I had to get started with trial and error. I have had IP6 POWDER, 6.9 g, went ok may do another one tonight . Secondly, had to start with 10 drops of CBS. I...

I had to get started with trial and error. I have had IP6 POWDER, 6.9 g, went o...

•6 years ago

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