Posts - Non Hodgkin's Lymphoma Friends | HealthUnlocked

Non Hodgkin's Lymphoma Friends

1,773 members • 799 posts

All posts for February 2017

Onwards and upwards

Hi Folks, Having finished 8 cycles of R-CVP on 16 Dec 2016, I am now in 'good partial remission'. I am satisfied with this outcome. I started my first...

Hi Folks, Having finished 8 cycles of R-CVP on 16 Dec 2016, I am now in 'good pa...

•7 years ago

Pain

I've been in alot of pain for 2 years. Been diagnosed with falicular lymphoma. What does everyone else do for the pain. My pain pills barely work anymore some...

I've been in alot of pain for 2 years. Been diagnosed with falicular lymphoma. W...

•7 years ago

Loosing 2 Children 19 months apart.

My 12 yr old son died unexpectedly while my 17 yr old daughter Chassidy was going through chemo treatment. He died on a Saturday and that Monday we had to take...

My 12 yr old son died unexpectedly while my 17 yr old daughter Chassidy was goin...

•7 years ago

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Advice for new lymphoma diagnosis

I just found out tonight my mother has lymphoma. Biopsy and another cat scan won't be done for 4 more days and they are sending her home. She lives in rural...

I just found out tonight my mother has lymphoma. Biopsy and another cat scan won...

•7 years ago

Remission time

Hi, Was looking to hear from others who have Stage 1 Grade 1, LGFL, I'm on watch and wait since May, 2015..... every three month visit with oncologist... had...

Hi, Was looking to hear from others who have Stage 1 Grade 1, LGFL, I'm on watc...

•7 years ago

Medical costs

I have NHL for over 2 yrs. I still work full time. I am 64. My husband is retired. Do any of you find the deductibles and out of pocket money almost makes me...

I have NHL for over 2 yrs. I still work full time. I am 64. My husband is retire...

•7 years ago

Bewildered

Hi I'm trying to find all there is to know about Burkitt lymphoma, my brother was diagnosed in September 16 since then he's gone through all sorts, docs not...

Hi I'm trying to find all there is to know about Burkitt lymphoma, my brother wa...

•7 years ago

Post transplant feedback

Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I...

Hello again. I am three months post stem cell transplant for NHL that crossed th...

•7 years ago

Newly diagnosed

Hello. Just diagnosed with grade 2 follicular lymphoma with no symptoms. Doctor says wait for treatment. Not sure what to do.

Hello. Just diagnosed with grade 2 follicular lymphoma with no symptoms. Doctor ...

•7 years ago

Urine odor has changed

I shared that I am still in Rituxin treatment every 3 months for Mantle Cel NHL until July 2017. Something I have noticed is a foul odor of my urine....

I shared that I am still in Rituxin treatment every 3 months for Mantle Cel NHL ...

•7 years ago

Just a thought, found this on a lymphoma club, I thought it was a good read

https://www.facebook.com/lymphomaclub/photos/a.147058645306694.29866.146504182028807/1664613310217879/?type=3

https://www.facebook.com/lymphomaclub/photos/a.147058645306694.29866.14650418202...

•7 years ago

Diet

Hi I am new here but would like to know what foods my daughter - with Grade 4 Non Hodgkin's Lymphoma - should avoid. Just had first dose of Chemotherapy.

Hi I am new here but would like to know what foods my daughter - with Grade 4 N...

•7 years ago

Shell Shocked

Had a 3 monthly appointment with hematologist today after being in remission since September 2016. However did get a diagnosis of low grade bowel cancer in...

Had a 3 monthly appointment with hematologist today after being in remission sin...

•7 years ago

Zydelig (idelalisib) my wonder drug

I'm reposting my story in hopes of catching up with more folks that have been using this drug. I've been 8 years living with Follicular Lymphoma and have had...

I'm reposting my story in hopes of catching up with more folks that have been us...

•7 years ago

What a shock

I just finished my first 8 weeks of chemo and now wait 3 weeks to have bone marrow biopsy to find out if it worked and exactly what kind of NHL it is. Am...

I just finished my first 8 weeks of chemo and now wait 3 weeks to have bone marr...

•7 years ago

New member

Hello, I joined to learn and share information on the following topics: splenic marginal zone lymphoma, Paget's disease, peripheral neuropathy and chronic...

Hello, I joined to learn and share information on the following topics: splenic ...

•7 years ago

New here...

Diagnosed in July 2014- RCHOP treated in Pittsburgh at the Mario Lemieux Center for Blood Cancers. Relapsed in November of 2015, received RICE then BEAM...

Diagnosed in July 2014- RCHOP treated in Pittsburgh at the Mario Lemieux Center ...

•7 years ago

Bone Pain after Chemo

I finished R-EPOCH on December 23. I was fine for a while and now all of my bones feel like they are going to crack in 1/2. I am sore first thing in the AM and...

I finished R-EPOCH on December 23. I was fine for a while and now all of my bone...

•7 years ago

Could Anyone help me with the type of lymphoma i have, and what is going to happen to me.

Hi everyone, im 15 years old, i had a plaque on the back of my neck right under my hair, u can say half of it is in my hair section where there is no hair, i...

Hi everyone, im 15 years old, i had a plaque on the back of my neck right under ...

•7 years ago

Hi! I'm new.

Hello-I have been fighting Non-Hodgkins Lymphoma since I was 35, and for almost 12 years. I had R-CHOP in the beginning, Bendamustine and VinChristine 8 years...

Hello-I have been fighting Non-Hodgkins Lymphoma since I was 35, and for almost ...

•7 years ago

FNHL grade 3a

I was dx April 2015 with FNHL and am on watch and wait. So far so good. I also have rheumatoid arthritis which was probably the impetus. Hope everyone else is...

I was dx April 2015 with FNHL and am on watch and wait. So far so good. I also h...

•7 years ago

Recurrent NHL diffuse large B cell

Hi, I am writing to hopefully gain some insight. My 69 year old mom was just diagnosed with recurrent NHL. She had been in remission for 2.5 years ( previous...

Hi, I am writing to hopefully gain some insight. My 69 year old mom was just di...

•7 years ago

B12

Is anyone getting vitamin B12 injections? First of all i have Follicular Lymphoma have had Steroids but primarily on watch and wait. I have fatigue and nausea....

Is anyone getting vitamin B12 injections? First of all i have Follicular Lymphom...

•7 years ago

Question about recent blood work results

I recently had blood work done because I have been feeling fatigue and just not well. The absolute lymphocyte count was 4.4 ( which was a little lower than a...

I recently had blood work done because I have been feeling fatigue and just not ...

•7 years ago

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