After having ET for approximately 8 years, last month I ended up with ischemic colitis. A CAT scan and Endoscopy and Colonoscopy (biopsy) determined that blood flow was restricted to the vessels in part of my colon.
It never occurred to me that something like that would happen from ET. I'm taking lovenox injections and just started hydrea.
I'm 42 years old.
Has anyone else had a similar experience?
Hello
I also have ET (diagnosed last year) and I am 45 years old. I was originally diagnosed with chronic fatigue syndrome and irritable bowek syndrome after a long history of digestive complaints. I suffered with inflammation and was on a very restrictive diet. I think it must have been because of the slower blood flow. I am feeling a lot better since being diagnosed and taking blood thinning medication. I hope this helps.
Goodness , I be never heard of this.
Hi MacDWild,
Was it clinically determined that your colon problem was caused by ET? Is the restriction to blood flow caused by a blood clot or something else? If it is ET related it must be very rare.
All the best
John
A poster on the forum (jerrymohler) has discussed this happening to him too.
This is an interesting thread. I was hospitalized and had surgery for severe diverticulitis a few years prior to being diagnosed with PV. I have had zero GI problems up till now. I was diagnosed with PV a year ago this month and started on Pegasys 2 months ago. This past weekend I had severe pain, bloody diarrhea, and fever like symptoms that I read to be consistent with colitis. This is a known side-effect of IFN treatment, but now I'm starting to wonder about whether GI issues are also consistent with thick blood. I'll be finding out what my insides look like during my scope next week. Praying that I will not have to discontinue Pegasys.
ET and surgery
MF , ET JAK2
ET with high HCT?
