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opioid induced hyperalgesia

Hey guys, So we've been in a weird lull, no new news yet, but scans upcoming w...

Food Taste Like $&/@!

Between the metal, cardboard and “poop” taste of food - the choices are dwindli...

Return to Work blessing

This has been a good week for Wayne and for me. He started back to work remotel...

Does it work?

Met with radiation dr yesterday about 20 days of low dose treatment. I have read...

Infusion

Hey guys, I hope all are doing well and getting through the struggles. There ar...

PleurX Issues

Hello all, Feeling very frustrated today...I'm not able to drain the fluid from ...

Steroid question!

Hey guys, Ryan has been having I guess what we can call joint pain.. he’s been ...

New Web Design

Am I crazy - when I log on the MRF website, I can't find the care giver section....

TIL Clinical Trial: Day +14

Quick update while my darling is sleeping, which you know is a rarity in a hospi...

TUMOR IS SHRINKING

We received amazing news on Wednesday...something we haven't gotten in a year. ...

Tumor Mets

So I finally asked about exact tumor numbers/sizes. This is the gist. Sorry for...

Pleural Effusion / PleurX Drain

Mom had the Gamma knife May 3rd, quickly tapered off steroids to have Infusion ...

Free Streaming Melanoma Symposium May 18, 2019 from LA

This may be something you want to check out and register for to join from your ...

#5 of 6 IL2 infusions going in now

I’ll write more later but the rigors that happen with the IL2 are impressive and...

Scan results

Ryan has his PET and MRI on May 7th, and we saw his oncologist the next day to d...

Happy Zero Day!

TIL infusion complete now with the clinical trial Team in our room all morning. ...

Melanoma and genetics

I was going to make this a long message, but decided to just give you a brief ru...

Moved scans

So the scans were moved up. Brain MRI and PET. Not for any particular reason, li...

TIL Treatment underway at last!

It's been a wild ride, but this morning we got the call to come be admitted to V...

What a ride..

Despite things not always being super easy right now, I feel very accomplished a...

Do you know your tumor BRAF status? You probably should

https://www.medpagetoday.com/reading-room/asco/skin-cancer/79179 NCCN guideline...

Back on delay for TIL

HSV had no change. Boo hiss. So no admission on Sunday Next blood draw Monday. ...

I think I write too much?

Some days I feel like I update this a lot! So I’m sorry if everyone sees my name...

Pause button

This has been a tough week. We should have been at VCU with Wayne in residence r...

Halted

So turns out Ryan’s ALT is extremely elevated.. only liver panel that was abnorm...

Brain lesions

For the past few weeks my mom has been suffering from pretty constant headaches ...

So confused -

Good news is we finally convinced my dad of a second opinion. He is scared to d...

Clinical Trials - Pending / Approved ?

Hi Everyone, My Husband endured stage 4 metastatic melanoma. I just wanted to ...

Fevers have been harsh

Hey guys, Second infusion; and I spoke too soon. I should know better 😕 the fe...

Seeking Melanoma Specialist West Coast

Recently diagnosed with stage IV melanoma, looking for recommendations for cance...
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