Posts - Melanoma Caregivers | HealthUnlocked

Melanoma Caregivers

All posts for April 2019

What a ride..

Despite things not always being super easy right now, I feel very accomplished and hopeful today. Moms 3d MRI showed no other brain tumors, and her Gamma Knife...

Despite things not always being super easy right now, I feel very accomplished a...

•6 years ago

Do you know your tumor BRAF status? You probably should

https://www.medpagetoday.com/reading-room/asco/skin-cancer/79179 NCCN guideline advises routine moleculat testing for stages 3/4 melanoma. ASCO released...

https://www.medpagetoday.com/reading-room/asco/skin-cancer/79179 NCCN guideline...

Ambassador•6 years ago

Back on delay for TIL

HSV had no change. Boo hiss. So no admission on Sunday Next blood draw Monday. And now all the imaging must be redone too: CT, PeT and brain MRI. Everything...

HSV had no change. Boo hiss. So no admission on Sunday Next blood draw Monday. ...

Ambassador•6 years ago

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I think I write too much?

Some days I feel like I update this a lot! So I’m sorry if everyone sees my name pop up a lot. Just want to tell you guys where we are. Not only has...

Some days I feel like I update this a lot! So I’m sorry if everyone sees my name...

•6 years ago

Pause button

This has been a tough week. We should have been at VCU with Wayne in residence receiving treatment via the TIL clinical trial. Instead, we are still at home...

This has been a tough week. We should have been at VCU with Wayne in residence r...

Ambassador•6 years ago

Halted

So turns out Ryan’s ALT is extremely elevated.. only liver panel that was abnormal. Medicine induced hepatitis 🙁 so no infusion today for Ryan.. we are on the...

So turns out Ryan’s ALT is extremely elevated.. only liver panel that was abnorm...

•6 years ago

Brain lesions

For the past few weeks my mom has been suffering from pretty constant headaches and physical head sensitivity. We met with her doctors, explained the symptoms...

For the past few weeks my mom has been suffering from pretty constant headaches ...

•6 years ago

So confused -

Good news is we finally convinced my dad of a second opinion. He is scared to death a new doctor will say something different and he will not know what to...

Good news is we finally convinced my dad of a second opinion. He is scared to d...

•6 years ago

Clinical Trials - Pending / Approved ?

Hi Everyone, My Husband endured stage 4 metastatic melanoma. I just wanted to see what additional clinical trials have been approved since June 2018? Or,...

Hi Everyone, My Husband endured stage 4 metastatic melanoma. I just wanted to ...

•6 years ago

Fevers have been harsh

Hey guys, Second infusion; and I spoke too soon. I should know better 😕 the fevers have been pretty bad. Although no other side effects accompany them. Which...

Hey guys, Second infusion; and I spoke too soon. I should know better 😕 the fe...

•6 years ago

Seeking Melanoma Specialist West Coast

Recently diagnosed with stage IV melanoma, looking for recommendations for cancer hospitals on the west coast. If anyone has been to Huntsman or has...

Recently diagnosed with stage IV melanoma, looking for recommendations for cance...

•6 years ago

Endoscopy results and more tests to come

Hello everyone, Some of Marks endoscopy results came back. He has Barrett’s esophogus which is a pre-cancerous condition. (He was supposed to have a resection...

Hello everyone, Some of Marks endoscopy results came back. He has Barrett’s eso...

•6 years ago

Ipi Nivo 2nd infusion

It may be too early to say; but I think Ryan has successfully gotten through the second infusion of Ipi and Nivo combo! I don’t know why, and don’t want to...

It may be too early to say; but I think Ryan has successfully gotten through the...

•6 years ago

Adoptive Cell Transfer: Tumor Infiltrating Lymphocytes (TIL) clinical trial underway from my spouse

Yesterday, at last, the meaty work of the TIL clinical trial began from my husband. We arrived at VCU at 5:30 am for 7:30 tumor harvesting. They had him in a...

Yesterday, at last, the meaty work of the TIL clinical trial began from my husba...

Ambassador•6 years ago

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