Posts - Melanoma Caregivers | HealthUnlocked

Melanoma Caregivers

All posts for May 2019

Infusion

Hey guys, I hope all are doing well and getting through the struggles. There are definitely days where I want to just sit and cry. And sometimes I do. A bit...

Hey guys, I hope all are doing well and getting through the struggles. There ar...

•6 years ago

PleurX Issues

Hello all, Feeling very frustrated today...I'm not able to drain the fluid from my moms lung today because there is too much tissue build up at the connecting...

Hello all, Feeling very frustrated today...I'm not able to drain the fluid from ...

•6 years ago

Steroid question!

Hey guys, Ryan has been having I guess what we can call joint pain.. he’s been on a rapid taper. To me, the pain in his knee, back and shoulder were super...

Hey guys, Ryan has been having I guess what we can call joint pain.. he’s been ...

•6 years ago

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New Web Design

Am I crazy - when I log on the MRF website, I can't find the care giver section. Only the patients....can only get to it by notifications.....

Am I crazy - when I log on the MRF website, I can't find the care giver section....

•6 years ago

TIL Clinical Trial: Day +14

Quick update while my darling is sleeping, which you know is a rarity in a hospital. Today is Day +14 since the TIL infusion (that's how they count. Zero day...

Quick update while my darling is sleeping, which you know is a rarity in a hospi...

Ambassador•6 years ago

TUMOR IS SHRINKING

We received amazing news on Wednesday...something we haven't gotten in a year. We found out that after 1 dose of TVAC into my husband's tumor...his tumor has...

We received amazing news on Wednesday...something we haven't gotten in a year. ...

surviveandthrive

•6 years ago

Tumor Mets

So I finally asked about exact tumor numbers/sizes. This is the gist. Sorry for terrible handwriting , still processing and not many people in my life...

So I finally asked about exact tumor numbers/sizes. This is the gist. Sorry for...

•6 years ago

Pleural Effusion / PleurX Drain

Mom had the Gamma knife May 3rd, quickly tapered off steroids to have Infusion May 6th, then ended up in ER on the 9th. She has a fever and lung fluid build...

Mom had the Gamma knife May 3rd, quickly tapered off steroids to have Infusion ...

•6 years ago

Free Streaming Melanoma Symposium May 18, 2019 from LA

This may be something you want to check out and register for to join from your computer:...

This may be something you want to check out and register for to join from your ...

Ambassador•6 years ago

#5 of 6 IL2 infusions going in now

I’ll write more later but the rigors that happen with the IL2 are impressive and exhausting. Nurses have been amazing. Peace Missy

I’ll write more later but the rigors that happen with the IL2 are impressive and...

Ambassador•6 years ago

Scan results

Ryan has his PET and MRI on May 7th, and we saw his oncologist the next day to discuss the results and his treatment plan going forward. I am excited to say...

Ryan has his PET and MRI on May 7th, and we saw his oncologist the next day to d...

•6 years ago

Happy Zero Day!

TIL infusion complete now with the clinical trial Team in our room all morning. Dr Phan bedside in striped shirt, RN's Jenn and Steph In scrubs. Oncology NP's...

TIL infusion complete now with the clinical trial Team in our room all morning. ...

Ambassador•6 years ago

Melanoma and genetics

I was going to make this a long message, but decided to just give you a brief rundown. When my son's melanoma reoccurred in 3025, he got genetic testing under...

I was going to make this a long message, but decided to just give you a brief ru...

•6 years ago

Moved scans

So the scans were moved up. Brain MRI and PET. Not for any particular reason, like I’ve said Ryan feels fine given the situation. His oncologist wants to make...

So the scans were moved up. Brain MRI and PET. Not for any particular reason, li...

•6 years ago

TIL Treatment underway at last!

It's been a wild ride, but this morning we got the call to come be admitted to VCU for the TIL study. We are so grateful to be here. All the admit labs went...

It's been a wild ride, but this morning we got the call to come be admitted to V...

Ambassador•6 years ago

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Caring for yourself while caring for someone else

Has being a caregiver impacted your relationship in a positi...

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