Does anyone else suffer from this?
I have had a form of tendonitis in my wrists with my lupus and also bursitis in my hip - both of which I understand are caused by inflammation in the body and can be linked to lupus?
I have had increasing problems with my back, mainly a stiffness when standing for too long. Washing up, cooking, ironing, watching my son play rugby in the cold winter - which I have given up doing, (my husband goes with him instead). I also had a period of muscles spasms in my back at the time of a lupus flare, but wasn't sure what the cause was as it was the first time I had experienced it. (September/October 2015).
Of course this means that if I've had a busy day with the children and cooking etc, my back seizes up by the evening and sometimes I can't finish tidying the kitchen etc and I have to sit down and my husband takes over.
So when I told my Rheumy about this, (in early 2016), increasing problem last year, she sent me for an MRI of my back, which found a syrinx cyst and that matter has kind of taken over. But we hopefully think it is a co-incidental finding and not growing - a 2nd MRI will be done soon just to confirm before I get "signed off".
Anyway, during the 2 appointments with Neuros re the syrinx cysts, I have told them about my back issues and the tenderness I have on my sides and thigh area - which I thought was a result of my OA in my hips - already had a hip op left side to extend the life of my own hip and know that I will need both hips replaced in due course. But it seems I had a positive bilateral Faber's test - which apparently indicates inflammation of the sacroiliac joint. This had never been suggested to me before. I cannot be linked to my 3 pregnancies.
Apparently there is an MRI that can be performed to see if there is inflammation / arthritis there? I do have a follow MRI booked re the syrinx but not sure if they will scan for the sacroiliac joint inflammation too.
So, does anyone else have this inflammation and it has been linked to their lupus?
I am getting frustrated with being told that my OA in my hips, knees and back and my aches and pains are as a result of being 42. I have friends with the odd twinge etc and one just had a knee athroscopy but generally all my friends work full or part time, are mums, run a home and exercise up to 5 times a week. I can barely function some days and have just started back at 1 pilates class a week, after 3 months off and that makes me ache for days. I don't think this is just my age. I know I have lupus but they do not suffer with the aches and pains I have.
I'd love to hear form anyone with inflammation of the sacroiliac joint with ideas for pain relief and like I said, has it been linked to your lupus?
Suffering spasms in my back again for a week now and having trouble sleeping. But at the mo I would say lupus is under control better than it's ever been. So confused.