Good evening all. I've been a "silent" member shy of a year now & this forum has proven to be of a comfort to me mentally & emotionally.
I'm 35y/o & was diagnosed with SLE at the tender age of 13. I also have Raynards, thyroid & premature ovary faliure (which I'm still not coping with)
In 2001 I went on to diyalasis & in 2006 I had a live transplante thanks to my mother.
Since my transplant my health has been ok to what it was like prior to my transplant - these couple months I have been experiencing intense pain to my muscles, joints & lower back along with burning sensation to my finger tips, spasms in my feet & hands, extreme tiredness, & no energy to do the simpilict things (to be honest the list of my complaints feel endless & depressing!) Blood test are showing no sign of the SLE being active & this makes me feel confused as to what is up as I'm quite good at understanding my imperfect body & it's complaints. I'm feeling real low & wish it was possible to sleep my days away until this pain eases up! I am mentally, physically & emotionally drained.
Thanks for listening