Hi Guys,
I’ve recently been having a flare of my lupus and am set to have rituximab this week.
My steroids was increased from 5mg to 30mg. This has been reduced to 20mg.
I have noticed that the skin on my hands are peeling a couple days ago (but didn’t really think much of it as I tend to get dry skin generally) but today it got noticeably worse and my the surface of my hands are tender.
Is this lupus related? Or a side effect of the pred? Or could it something else?
HiI have had the same thing for the passed 3 months or so.
It has got so bad I literally have no finger prints !!
My fingers are now quite painful now.
I have been diagnosed with SLE & Anti Phospho Lipid Syndrome.
I am a nurse and have asked several colleagues and several nurses who have provided clinicAl assistance.
It is not dermatitis or allergic reaction. I use nitrite gloves for household tasks. I have tried several hypoallergenic hand creams.
Nothing works !
I would love to hear from anyone's experience gothic symptoms.
Alison
Hi there I had this - it was awful - are you under the care of a Lupus clinic ?
Hi, sorry that it was awful for you! Yes, I am - ive let them know that ive started to experience this so im hoping they get back to me soon. I type all day for work and let's just say that yesterday was less than fun!
Ok - if I remember rightly this was an internal issue ie a deficiency of a vitamin- can’t remember so will do some research for you and need to find out name of hand cream that works wonders too - ty my hands were so bad I had to wear white cotton gloves for fear of picking up infection or worse passing infections onto supermarket trolley etc which wasn’t fair to others - be back shortly!
Hi Sandy et al - had to go back a few years on my e mails and found it - the hand cream is called Flexitol and is on Amazon UK with great reviews - it repairs as well as hydrates - not sure if sold in chemists though - be careful your hands aren't infected in the cracked areas - but try this and if it doesn't help then look down that route. The reason it happens is in my opinion your body showing up a vitamin or mineral deficiency - be back on that if you can take with your drugs etc. - if you can let me know what medication you are on -if you can share I can check to see any interactions but of course you must also let your medical team know if you do take anything in the way of supplements. Best way to use is to use at night and keep a pair of cotton gloves on hands and it will give the skin the time to heal during the night away from chemicals and hard work for the hands. Read leaflet though for in depth ways to use !
Forgot to add - I was a secretary too and pain when typing was excruciating!
Sandy just seen out of stock on Amazon UK site - here is the link from the Flexitol website what might help - please make sure you buy the hand balm nothing else.
flexitol.co.uk/products/rap...
thank you so much! I will have a look into that hand cream and invest in some cotton gloves. I’m on pred, azathioprine and hydroxychloroquine. I also take omeprazole as a stomach liner.
I would say if you can get your hands under control with the cream then that would be a good start but omeprazole whilst necessary it does stop stomach acid being produced which can make it possible there is malabsorption of certain vitamins and minerals - particularly B12 and others. But I am not at liberty to tell you what to take or not to take but just make you aware - are you able to ask your Lupus Consultant to check your Vitamin B12, D - Zinc selenium and Magnesium levels for you - I know they (the NHS) are doing these now ( I used to have to pay privately for these tests) because I had them done at my last appointment - I am at a clinic in London Hospital I won't name.
If you find you are deficient it isn't as easy as just taking what you are deficient in because of the drugs you are on - you would need to check on an interaction checker website that the vitamins/minerals/supplements do not interact with your medication protocol. Hope this helps !
Let us all know how you get on !
Hello
Do you have a photo?
This is how my fingers go when in a flare
Is it similar?
Best wishes
Sue
Hi Sue,
I’m so sorry that happens to you! Mine is nowhere near as much as yours. It’s not as bad as last week thankfully and ive been peeling it off (maybe i shouldnt have but too late now)
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Itching hand...Lupus related?
