Snapping under skin on hands.

[MonicaT]

Hello I have lupus sle, sjogrens and fibro. I have recently been experiencing what only feels like elastic bands snapping under my skin. Which cause huge pain then a bruise for a few days where it "snapped". This happens when im going about my day to to buisness and can happen with something as picking a cup up. But its always if I have to bend my fingers back in some way. I see my rhumay soon, but I just wondered if anyone else experiences this. Thank you. Ps im on methotrexate amd hydrochlproqhine and steroids

[PMRpro]

Is this in finger (or toe) joints? Though I have just discovered it can happen elsewhere - thanks for asking!!!!

Sounds like what I feel with Achenbach syndrome. Many of the images online are terribly dramatic but I have just found a much better set of pictures!

dermnetnz.org/topics/achenb...

[MonicaT in reply to PMRpro]

Omg. Thats exactly it. In my fingers and hands. Oh thank you so much for this , its spot on! Its so painful when it happens, isnt it?. I always feel like ive broken something lol....you are an angel for this, at least I know now im not going mad and I also wont die. Thanl you so much xxxxxxx

[PMRpro in reply to MonicaT]

Having a label makes it all bearable doesn't it!!! No - you will die sometime. we all will, but not yet or of that!!!!

[MonicaT in reply to PMRpro]

Hahhahahahhahah very true. Thats it I just like to know what it is so I can deal with it. In the grand scheme of things, its just a little irriatant now I know 😊. Have a lovely day and thank you again

[FandNnan]

My comment is 'me too'. I had no idea what it was so it's good to know. My mother used to have it as well.

I take Apixaban to thin blood as I've had DVT and just associated the two things but from the article it seems they're not related. Nor directly related to lupus although some of the possible causes of the bruising are similar to lupus features ie low platelet count, vitamin C deficiency, Raynauds.

You're right - it's annoying, painful, awkward when you're trying to manually do things, but also - it's thankfully not a scary life threatening development. 😊

[MonicaT in reply to FandNnan]

Im just glad I know what it is now. Theres always something isnt there. Everytime it happens I think ive broken something. Lol. But we can cope with this one. 😊. Have a lovely day xx

[DogHospiceMom]

One of the symptoms of Sjogrens I had was acute hand pain. I was being treated for TMJ at the time and the doctor treating me had been diagnosed with Sjogrens 2 weeks before me and had the same thing. It became so severe, I had a Medtronic pain device implanted in my spine. It never worked and 18 months later it was removed. Eventually the ligament between my thumb and index finger dissolved. Once it was over, the pain in my hands stopped.

[MonicaT in reply to DogHospiceMom]

Awww bless you. Sounds horrendous. Thank goodness it got better, after you going through hell! You just never know what you are going to wake up with each day with these illnessess.