Lupus skin rash

[Lisalou19]

I have a reoccurring undiagnosed rash which burns like hell. A noticeable spike during the 2 weeks before my period. My rash is not limited to just my nose and cheeks, I get it on my forehead and more recently my hands, chest, knees and feet. I am interested to hear of others rash experiences. I never thought I could possibly have lupus but symptoms are getting so much worse

[leslieliesel]

I had neck rashes before my period also....didn't even consider Lupus back then...at 62 I developed my worse rash yet!! Biopsy, blood work...Lupus...I wish I knew how to post a pic of my rash...Ches,t back ,lower arms ,and hands....not my face......My DX is subcutate(sp?) skin joints and fatigue...my rheumy said because I am an old white female, I am fortunate...she believes I will not have organ involvement...I see her every 3-4 months

[Lisalou19 in reply to leslieliesel]

Did your skin biopsy detect lupus? I’m really considering doing this private as I’m getting really depressed with the lack of support from UK doctors. I’ve been to so many during my flare ups and they all seem confused by the rash appearance x

[leslieliesel in reply to Lisalou19]

Yes it did detect Lupus...if not for my rash, I thought I was feeling so crummy because I am older...Years ago, without a biopsy, I was told I had lichenplanus...I bet I didn't..I bet it was Lupus....so yes to Biopsy xoxo..Bloodwork is also part of the DX of course

[Lisalou19 in reply to leslieliesel]

That is reassuring to know. I’ve actualky received a letter today to see a doctor who runs a rheumatology dermatology clinic. I’m feeling abit more up beat, I’ve got so worn out with doctors not listening. My dad suffers rheumatoid arthritis so my risk is high for auto immune diseases, no one has even listened to that and I only managed to find it out for myself after years of suffering. Sometimes it’s realky difficult to explain to others who just see a rash, they do not understand the mental and physical side of it. X

[leslieliesel]

Yes, Biopsy a must..I hope you still have the ash when you go to your appointment!

I didn't even bother telling Drs how I really felt after a while..so as awful as my rash was, I'm glad I have evidence that could not be ignored ....good luck xo

[Mean-time]

Re skin rash, have you had a biopsy? I recently had one from dermatologist, came back Sweet’s Syndrome along w undetermined ‘other’ unspecified connective tissue conditions. I also have IPF, dermatamyositis, and the rest of mixed bag. Hydrocortisone 2.5 eased the itching. Good luck n God bless!

[leslieliesel]

My husband has Sjogrens..he has a new rash that burns like hell he said...maybe time for him to get back with a Rhuemy...I have Lupus..BAD rash but I do not remember it burning

[Lisalou19]

That is interesting. I received a letter with the possibility of my symptoms being a form of Vasculitis.

My rash feels like I’m in a burning house, it typically onions burns my face but the rash appears on my hands knees and feet also.

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