Lupus rash?? : Hi, I'd like to know if anyone gets... - LUPUS UK

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Lupus rash??

Bronn profile image
7 Replies

Hi, I'd like to know if anyone gets Lupus rash just under the bust please, I get Lupus rash on face in blotches around cheeks nose and eye brows but I don't know if it's possible to get the rash on the torso.

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Bronn
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7 Replies

hi bronn , i think you can get it on the torso , mostly though mine is more active on my arms, ears and on my scalp, try to avoid the sun but enjoy the summer also, to much of a good thing I suppose , perspiration could be a problem

Bronn profile image
Bronn in reply to

Thank you turkeyboy67, I don't think it's from perspiration I've been getting it for about 2 years. I'm seeing my rheumy tomorrow I'll get her to have a look and decide. Going on mycophenolate from tomorrow maybe that'll help.

I've bought cotton scarves, head visors and got factor 50+ suncream from my gp, but I still don't think I'll be out of doors much. The sun makes feel so il 🙁 but hope to enjoy some time in my courtyard under parasol 🤞🏻This disease robs one of so much, my 18 month old grandson doesn't understand why nani cannot play with him, makes me so sad 😟 Hope you manage to enjoy the weather a little too.

in reply toBronn

that's so sad hun, try to be positive and remember everyone is here for you 😉

eduardita profile image
eduardita

does your body get extremely hot as if you had a a very high fever, then a week or so later you notice rash? I hve this problem, before it did not itch, now it does a bit, I also got it this time under my abdomen, what helps me is cool wet small towels placed in area till it feels better. I am in the process of finding out if I do or not have lupus, the p.a. said I did then doctor said no, I did not. in meantime I am forever tired badly, no appetite, also face gets pitch red if I exert myself, my nose always has atinge of red on top, cheeks stay red almost always, hope you feel better soon.

mo4eva profile image
mo4eva in reply toeduardita

Hello, I get a bright salmon colored rash across my abdomen following a high fever and extreme fatigue. Flu like symptoms and general body aches accompany these symptoms as well. Every crisis starts like this but it goes away faster than I can get into the doctor. I have tried to take pictures but it doesn't photograph well and the doctors are baffled. The plaquenil seems to make the time in between these events longer but they still occur.

Bronn profile image
Bronn in reply tomo4eva

Thanks for you reply, no flu like symptoms just this rash 😡 I'm hoping that starting mycophenolate tomorrow will help 🤞🏻 Wish you all the best

Bronn profile image
Bronn in reply toeduardita

Sorry you are suffering eduardita, the way you describe your nose and cheeks sounds as if it may be the lupus malar rash. I'm not getting a fever, it does itch a little but I itch all over my body at times it just doesnt seem to stop. Hope you get some result of what is your problem, and get some relief soon. Take care

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