Lupus rash: Hi. I am a 46 yr old who is currently... - LUPUS UK

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Lupus rash

Missie71 profile image
Missie71

Hi. I am a 46 yr old who is currently under going several tests to figure out what ails me. I have painful joints. Especially my feet and shoulders. And there are other symptoms as well. Doing the dreaded google search I stumbled upon lupus and the rash on face and neck and arms. I feel that I have that butterfly rash. I have uploaded a pic to see if anyone else thinks so. Thanks and wishing everyone good health.

9 Replies

Hello. It looks very like a lupus rash to me but I would let your doctor see it. Have you been in the sun? I have SCLE and am sun sensitive so always use factor 50 and avoid the sun as far as possible. Good luck!

Hi Barbara... I haven't been in the sun. The redness on my neck and chest has been there ironically since I did get a sunburn about 6 years ago in Jamaica. I am hoping my doctor listens to me. I go tomorrow. He has been trying to tell me the pain is all in my head.

And I do now avoid the sun as much as possible (Even though I love travelling to the Caribbean). And use the highest SPF I can find.

Any suggestions on how to approach my doctor would be helpful too please.

Would have thought your rash is lupus related. Show pic to doctor

Missie71 profile image
Missie71 in reply to Gcart

I tried and he didn't seem to want to see it. Said it could be rosacea or my skin tone or sun damage from over the years.

Please get a biopsy while you have the rash....That is how I was able to get my DX...my lupus affects my skin joints(mostly small fingers wrists feet)and the worst is fatigue ..i was 62 last fall when dx'd

I take hydroxychloriaquine and my pain is all but gone..still have horrible fatigue and can not go outside with out sun block..skin is very sensitive ..

My doctor sent me for the blood test today. So now a waiting game. Although I got the impression he dud it ti shut me up. I have been making repeat visits to him for different things that I now know could be possible symptoms of lupus. He has been making me feel like he doesn't believe me. Hopefully I will get some answers soon. Thanks for the responses.

Oh dear. Doctors need to start listening and looking . Keep strong and continue to get a diagnosis

Chanpreet_Walia profile image
Chanpreet_WaliaAdministrator

Hi Missie71,

Welcome to the LUPUS UK HealthUnlocked Community!

Skin involvement is common in people with lupus, affecting around 60-70% of lupus patients. A malar (butterfly) rash is usually a pink or redish-coloured rash which mainly occurs on the cheeks and the bridge of the nose. A malar rash is generally not permanent; it often appears when disease activity is higher or when exposed to certain triggers such as UV light. Click here to read our booklet on lupus and the skin: lupusuk.org.uk/wp-content/u...

To find out what symptoms are commonly associated with lupus, please click here: lupusuk.org.uk/the-symptoms/

To read about the specific tests and criteria that need to be in order to make a diagnosis of lupus, click here: lupusuk.org.uk/getting-diag...

Below, I have included some information links which I hope you find useful:

Joints/Muscles: lupusuk.org.uk/wp-content/u...

Pain Management: lupusuk.org.uk/pain-managem...

Lupus and the feet: lupusuk.org.uk/wp-content/u...

Please let us know how you get on, wishing you all the best.

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