Lupus rash

[Missie71]

Hi. I am a 46 yr old who is currently under going several tests to figure out what ails me. I have painful joints. Especially my feet and shoulders. And there are other symptoms as well. Doing the dreaded google search I stumbled upon lupus and the rash on face and neck and arms. I feel that I have that butterfly rash. I have uploaded a pic to see if anyone else thinks so. Thanks and wishing everyone good health.

[Barbara17]

Hello. It looks very like a lupus rash to me but I would let your doctor see it. Have you been in the sun? I have SCLE and am sun sensitive so always use factor 50 and avoid the sun as far as possible. Good luck!

[Missie71]

Hi Barbara... I haven't been in the sun. The redness on my neck and chest has been there ironically since I did get a sunburn about 6 years ago in Jamaica. I am hoping my doctor listens to me. I go tomorrow. He has been trying to tell me the pain is all in my head.

And I do now avoid the sun as much as possible (Even though I love travelling to the Caribbean). And use the highest SPF I can find.

Any suggestions on how to approach my doctor would be helpful too please.

[Gcart]

Would have thought your rash is lupus related. Show pic to doctor

[Missie71 in reply to Gcart]

I tried and he didn't seem to want to see it. Said it could be rosacea or my skin tone or sun damage from over the years.

[leslieliesel]

Please get a biopsy while you have the rash....That is how I was able to get my DX...my lupus affects my skin joints(mostly small fingers wrists feet)and the worst is fatigue ..i was 62 last fall when dx'd

[leslieliesel]

I take hydroxychloriaquine and my pain is all but gone..still have horrible fatigue and can not go outside with out sun block..skin is very sensitive ..

[Missie71]

My doctor sent me for the blood test today. So now a waiting game. Although I got the impression he dud it ti shut me up. I have been making repeat visits to him for different things that I now know could be possible symptoms of lupus. He has been making me feel like he doesn't believe me. Hopefully I will get some answers soon. Thanks for the responses.

[Gcart]

Oh dear. Doctors need to start listening and looking . Keep strong and continue to get a diagnosis

[Chanpreet_Walia LUPUS UK]

Hi Missie71,

Welcome to the LUPUS UK HealthUnlocked Community!

Skin involvement is common in people with lupus, affecting around 60-70% of lupus patients. A malar (butterfly) rash is usually a pink or redish-coloured rash which mainly occurs on the cheeks and the bridge of the nose. A malar rash is generally not permanent; it often appears when disease activity is higher or when exposed to certain triggers such as UV light. Click here to read our booklet on lupus and the skin: lupusuk.org.uk/wp-content/u...

To find out what symptoms are commonly associated with lupus, please click here: lupusuk.org.uk/the-symptoms/

To read about the specific tests and criteria that need to be in order to make a diagnosis of lupus, click here: lupusuk.org.uk/getting-diag...

Below, I have included some information links which I hope you find useful:

Joints/Muscles: lupusuk.org.uk/wp-content/u...

Pain Management: lupusuk.org.uk/pain-managem...

Lupus and the feet: lupusuk.org.uk/wp-content/u...

Please let us know how you get on, wishing you all the best.