Hello, I'm Suzanne, 43 years old. I have narcolepsy with cataplexy, I've also been recently diagnosed with fibromyalgia in November 2017 after going back and forth to the GP complaining of widespread pain for the last 19 years. However, my symptoms seemed to have changed in the last year. I'm getting recurring swollen glands-every 6 to 8 weeks in the autumn to spring time. The last and worst flare-up was in October 2017 to November 2017. It started off with complete physical and mental exhaustion for 5 days, then a fever, swollen glands in neck, back of head and right groin, incredibly painful joints, especially all of right arm and hand, GP said shoulder was inflamed. I had carpal tunnel as well. My right leg below calf muscle was pulsating with pain. I was bedridden for two days. Full blood count showed no infection. Also for over a year, I've noticed tops of my arms have a mottled discolouration, sometimes purple in colour and always cold to the touch. I also get hot flush type problem. My cheeks, nose and chest go bright red and feel hot to the touch, sometimes accompanied with migraine. I also go bright red around neck and chest every time my glands swell or with sore throat. 3 weeks ago, I had a new symptom where my right hand and forearm went red and hot to the touch and very painful in my fingers and wrist but left arm and hand were normal colour. This lasted for about an hour. I'm now wondering if I have lupus. I'm getting over a nasty ear infection in both ears and my right eardrum is ruptured. My GP is stumped by my symptoms. Does it sound like lupus and what should do? I forgot to mention that I am losing hair on the sides and top of scalp, it's itchy and bumpy, and I'm making it worse by picking at the bumps causing scabs. I also get a lot of urine infections, migraines and during the oct-nov flare up, I had sores in my right nostril on the septum. That comes and goes as well.
This is the rash I get a lot with swollen lymph nodes. I also get bright red rash across cheeks and bridge of nose but that's not dependent on my swollen lymph nodes.