lupus ?

[GGHolly]

I have had one positive ana test ,three months later had another one that was negative?I have a rash on my cheeks &nose & forehead, pain in my hands& fingers &toes feels like frostbite, my legs feel really heavy, pain in my stomach & chest pain, sensitive to sunlight & bright lights. I was diagnosed with M.E. When I was 30, I am 68 now.i have angina , ibs, overactive thyroid & was also diagnosed with fibromyalgia,I have insomnia & sleep apnea I have a machine at night. I feel awful!!! I know something is not right. You know your own body!!just need some advice , hoping they send me to a rheumatologist lm at my wits end

[stiff19]

I hope they send you too and best wishes 🙏

[GGHolly in reply to stiff19]

thanks

[grumpyold]

I can't offer any constructive help because I, too, am struggling to get a diagnosis.

I just wanted to send you a hug and say, you're not alone. 🫂x

[GGHolly in reply to grumpyold]

Thank you x

[KayHimm]

GGHolly -

For your doctor to do the ANA they must be suspicious of an autoimmune disease. You might want to ask how they interpret the positive test. They look at titre, your age, and whether specific autoantibodies were found.

I would also ask about your rash. A lupus rash is very specific and I would think if your doctor saw a classic lupus rash they would take that very seriously. Could you post a photo?

Best of luck

Kay

[GGHolly in reply to KayHimm]

The dermatologist said the rash was rosacea, and

She recommended I have the test for lupus,

[DogHospiceMom]

I know the frustration you feel. Because of my experience I believe that MTHFR is a condition that should also be considered. In addition, have you been screened for all tick born illnesses? Although I was diagnosed with fibromyalgia, Sjogrens, Lupus, Chronic Fatigue, I one time was admitted to the emergency room with Rocky Mountain Spotted Fever. However, many people have Lymes for years without a diagnosis.

[GGHolly in reply to DogHospiceMom]

Thank you for your advice