My rheumy consultant has been trying for months now to get the funding for this drug (Rituximab). He has appealed three times now without success, so I was wandering how the others have managed to get this drug, was it easy or difficult?
I have Mixed Connective Tissue Disorder (SLE) with fibrosis of the lung. I am now using ambulatory oxygen so I can have a normal life (if that is possible). I also have all the other lupus symptoms and have had all the drugs that are given but nothing has helped. I am just on 10mg of Prednisolone now.
Right now I am going through a flare and yet another urinary tract infection.