For those of us with lung co-morbidities

[whisperit]

One of the special treats of my UCTD is lung disease, which has been termed "interstitial lung disease" and bronchiectasis. It wasn't clear to me how far this counted towards the "highly vulnerable" category of COPD I'd seen to date.

I've now found a much more detailed determination here on the British Lung Foundation's website. Hope it helps:

blf.org.uk/support-for-you/...

Just as an aside, I had a hi-res lung CT and lung function tests earlier this year, pre-COVID. My rheumy described the results to me verbally as "fine". But when I received the actual results in the post later, it transpired that I had "moderate bronchiectasis" throughout and an apparent 15% drop in lung volume over the last 12 months or so.

My GP was unable to interpret the LF test result (all graphs and acronyms), and was unable to access my CT images (wrong database). My rheumy team didn't respond to my request for a phone discussion.

Now that COVID's here, my questions have taken on a new significance. It would be nice to think this crisis will encourage clinicians to see that patients don't ask questions for the fun of it.

[eekt]

Whisperit! Lovely to hear form you again! 😊

The handy calculator produced by the BSR includes lung problems...think you've hit bingo on that one, shout House! 🤪 😵 😖

versusarthritis.org/rheumat...

The page includes the words: 'If you are unsure about your level of risk, please contact your rheumatology team.' ...I have your kind of rheumy, who feels finger joints and declares everything 'fine'....the kind who pressed me to take Aza with no clinical basis for it, so he would feel better (I'm nervous' he said)...and who has said advice on my hearing loss (and treatment) can wait until audiology re-opens LOL! I won't be able to hear the phone by then 🤭 💩

Curiously, I read somewhere that a 15% drop in hearing would prompt treatment...seems it's a lucky lotto number!

Anyway......….the trick is to keep breathing*..

Stay safe! xxx

*A very fine novel by Janice Galloway

[honeybug]

Hi whisperit 😊🌿🌸🦋

I don’t want to cause conflict with your country’s ratings but here in the USA if you have any underlying health issues especially lung issues and age 60-69 you are high risk as this plague attacks the lungs.

We have healthy people of all ages who’s lungs were completely destroyed by this disease.

Please with your conditions be safe stay isolated.

Hope this helps.much love and prayers.

EvaJo xxx

[PMRpro]

GPs do a 3 year training with a rotation on different speciality units - from a range listed here

gprecruitment.hee.nhs.uk/re...

But in the UK it doesn't include pulmonology specifically as far as I can see.

[misty14]

It's tough Whisperit in these times for us battling our illnesses!. Test resukts like that are important to us ie a change for you with lung capacity but to the clinician's it's much more clinical and 15 % to them is 'low' and ' fine'. It was bad that your Rheumy team didn't call you back to discuss it and now the dreaded virus has intervened!. You certainly do need to be shielded with those problems so stay as safe as possible and keep well. Xx😊

[whisperit in reply to misty14]

Thanks misty, Yes I do get fed up with clinicians paying little attention to our concerns in preference to what they think is important. In this case, the appearence of COVID underlines the point. Stay well x

[misty14 in reply to whisperit]

Hi whisperit

You needed that reassuring phone call to talk thru your results which sadly you were denied !. Ironic that it was covid that denied you when your going to be extra worried about it and needing their advice.

Stay safe and well too. There was a glimmer of hope tonight on the news that the social distancing measures are working!. Fingers tightly crossed it keeps improving, these two weeks are crucial.Xx

[Oshgosh]

Hi,I’ve looked s at the link and am possibly more worried than I was before.

I seem to fit into more risk groups than i thought.

I just have to stay at home for the next 12 weeks.hopefully I will feel more positive in the morning after a sleep.

Stay safe everyone

[whisperit in reply to Oshgosh]

sorry about that Oshgosh. Stay well x

[MandieR]

For myself I always have a course of steroids and strong anti biotics, as both gp and I know that I go down very fast.