I can move and it feels amazing.

[AmyKG]

I don't want to speak too soon, but I am over the moon. I have cried with happiness this morning.

After yesterday's steroid injection nightmare, today is a good day. The best day I've had in over 2 months.

Nothing hurts. My joints aren't swollen. I woke up early full of energy. I could lift myself out of bed. I ate all my breakfast without feeling full or sick. I can hold my toothbrush properly.

The injection site is a little sore and my chest rash is still there but honestly that's the least of my worries. I woke up early enough to watch the sun rise over my beautiful city. I forgot what it feels like to be properly awake, it feels like I've just been existing for the past few weeks and not been able to focus on anything properly.

I am making it my mission to try and make people who are struggling feel better while I am feeling strong enough in myself.

[Treetop33]

Great news. I hope you enjoy this time to the full.

[AmyKG in reply to Treetop33]

Thank you Treetop33, hope you are well x

[misty14]

Hi Amy

So pleased to read your injection improvements after such a horrid reaction!. Enjoy them to the full!. I've had jabs too but they've never hurt like yours did !. X

[Lupiknits in reply to misty14]

Great news! I was told not to overdo things when the injections worked for me. It's entirely possible I did, but, oh, it was wonderful! So happy for you x

[AmyKG in reply to Lupiknits]

Thanks Lupiknits, I have been told not to overdo things too but I'm just so excited! I don't want to burn out so I'm having a very relaxed evening today. Hope you are well x

[Lupiknits in reply to AmyKG]

I'm fine thanks. As soon as those injections kicked in I was, at last, able to do a few things I'd been worrying about, like the whiffy cupboard with pull out shelves. Turns out it was various dog treats that had slipped down the back. I hadn't dared ask someone to help in case there was a rat's nest or something. The week after, my dog hurt his leg and I was able to sit on the hard floor at the vet's with no problems.

Best of all, the effects lasted longer than they said they would. It was a glorious few weeks !

[AmyKG in reply to Lupiknits]

Aww, I'm glad you got the chance to sort some things while you were feeling better. It sounds like your symptoms have come back, will they not let you have another injection or are you coping in other ways? Here if you need someone to talk to x

[AmyKG in reply to misty14]

Thanks misty14, I am having a wonderful time! I actually had the energy to go to the shopping centre today and treat myself! The pain lasted quite a while but when I woke up the next morning it was fine! Hope you are well x

[misty14 in reply to AmyKG]

That's wonderful news Amy!. Isn't it great doing more normal things and not paying a high price for it. I hope you have relief for a long time.

I've broken my foot and got important XRay this week to see if it's healed!. Had this boot for six weeks and hope I can ditch it!. Thanks for asking. Keep posting. X

[AmyKG in reply to misty14]

It definitely is, and thank you. I'm sorry to hear about your foot, really hope you are on the mend and hope the X-ray goes well! x

[misty14 in reply to AmyKG]

Thank you Amy. X

[whisperit]

Thanks great to hear. Sometimes, it's only when you get a reminder that you understand just how fantastic "normal" really is! Long may it last! x

[AmyKG in reply to whisperit]

Thanks whisperit, crossing my fingers that this feeling lasts! Hope you are well x

[Paul_Howard Partner LUPUS UK]

Hi AmyKG ,

It's great to hear that you've had such a positive response to the treatment and that you are feeling more like yourself again. Be careful to pace yourself and not try to fit everything in while you are feeling like this. It is important to try and avoid a boom and bust cycle.

[AmyKG in reply to Paul_Howard]

Thank you Paul, I will be sure to take things slow and still take care of myself. I'm just so happy, I feel like me again and I'm not stressing about lupus symptoms anymore which helps with my mental health a lot

[nanagill]

That's great news! I remember saying to people "I feel almost normal" We certainly appreciate "normal" more than most. Enjoy

[AmyKG in reply to nanagill]

Thanks nanagill, we really do appreciate normal more than most! Hope you are well x

[Sadiemay]

Amy, so glad your felling so much better. I too had a horrible painful time with a sciatica injection. I cried with the pain during then the novacaine kicked in for a couple of minutes. I was in horrible shape for days and will never do that again. I was wondering if your rash on your chest has a diagnosis, I have had a horrible rash on my chest and neck for 6 months and no one can tell me what it is.

[AmyKG in reply to Sadiemay]

Hi Sadiemay, I'm sorry to hear about your sciatica injections, that sounds awful hope you are feeling better now!

The rash on my chest has been there for around 7 weeks now, the consultant noticed it when I was being diagnosed with lupus however didn't give me any medication/cream for the rash. 4 weeks later I told my GP as it still hadn't gone and he thought it was a yeast infection yet it doesn't hurt or itch. As such his diagnosis, he gave me Canisten cream and I've been putting that on twice a day and it hasn't made any difference so I don't think his diagnosis was right. The injection has cleared up all my other symptoms except the rash so I'm really not sure what it is. Probably go back to the GP but it doesn't hurt so I'm in two minds about going. Does your rash itch/is it painful? x

[Sadiemay in reply to AmyKG]

Thanks for replying, yes my rash itches like crazy!! At times it has clear filled blisters that will leak, then dry up and kinda scale. I've tried everything even prednisone with no results.

[AmyKG in reply to Sadiemay]

Ouch, sounds very painful could it be contact dermatitis? Have you seen a dermatologist?

Mine doesn't itch at all and isn't red. It looks almost like hives so I'm not too sure what it is but it's not bothersome, I'm just really worried about what it could be and how to get rid of it.

[Sadiemay in reply to AmyKG]

I'm happy for you that yours is not causing much discomfort. I agree with wanting

[Sadiemay in reply to Sadiemay]

Oops! Crazy fingers sent before I was done. I was saying that I agree with you with wanting to know what the heck it is! I have been playing detective, like always and at this point it cannot be contact dermatitis due to the fact that the rash has never spread farther than my neck and chest. Very strange but even my drs tell me that with me not surprised. Thanks Amy for your assistance in trying to figure something out.

[AmyKG in reply to Sadiemay]

Not a problem Sadiemay, I'm still not sure whether we have the same/similar thing as mine has never spread further than my chest either! In any way, I really hope you find out the cause and heal quickly. Best of luck! And if you find anything that works for the rash, please let me know! x

[Silvergilt]

Yay! Enjoy the reprieve to the full. DO MANY OF THE THINGS!

[AmyKG in reply to Silvergilt]

Thank you, I will do all of the things!