I don't need to repeat my full history for you all I'm sure. I've been on MMF since July - got up to full dosage of 3g a day by end of August. I wasn't sure at last Rheumy and Dermy appt if i was seeing an improvement and was a little disheartened by it all. But I am pleased to say that I think it is working and has just taken a lot longer than I expected.
I haven't had a headache for over 2 months. Which is huge for me. The diarrhoea is under control - although I still have to be careful with the amount of fruit and veg I have a day. I still have to nap - but it hasn't been every day - but generally my energy levels are vastly improved.
I have been struggling with a nasty barking cough and cold since before Christmas. My husband had it for 3 weeks and was quite poorly. I don't know how he made it into work some days. The cough has given me sleepless nights and generally made me feel tired. But it's Christmas and with 3 children, the build up with school events and concerts and general preparation - it is a very busy time and hardly surprising I feel a little under the weather.
But the last few days I have finally thought, "Yes, I am beating this". The cough is virtually gone and my nose dried up.
Then this morning, I awake and feel like I'm at the start of a cold again. Nose is running like a tap and I can feel it behind my eyes again.
When I looked at my health diary last night, on 17th November, I wrote that I had been fighting a cold for a month.
It seems to be something I just can't quite shake off.
But the lupus, on the whole, seems to be under control. I think I've had a little hair loss recently, some sores on my head, in my nose, and in and behind my ears - but generally much much better than before.
What to do? If anything. Do I just have to live with the cold? Is this normal?