Hi everyone I am currently trying to reduce my steroids and I am feeling very nervous as on the two occasions I tried before the first time was very quickly followed with a pulmonary embolism which had me off work for 3 years and the second manifested discoid lupus. I have managed to get down to 10.5mg daily but you don't really get tips or have an idea of the positives of getting off steroids. Has anybody got some uplifting stories about if it made them feel good getting off them. I have been on them since early 2004 and I am getting stories from the rheumy about long term effects which are just as frightening.
Any advice appreciated