Restless and sleepless nights.

[imzi]

Hi,

So it’s 4.45 am in the uk here. I have slept for max 3 hours. This is becoming a normal pattern and it’s exhausting me. I am so tired the next day but this doesn’t help me to sleep during the night.

I don’t know what to do I haven had a good full nights sleep since November. I’m not in pain at night I’m so restless it gets me up.

I start work in two weeks so really need to get into a routine of sleeping.

Any suggestions for a good nights sleep please.

Thank you

I.x

[Melba1]

I’ve had the same for 9 months now and haven’t found anything that works I’m afraid except for sleeping pills. Zopiclone I think they’re called. I try and only take once or twice a week but it’s so nice to have a proper nights sleep on them. The GP is very loathe to prescribe more because they are addictive but I think a good nights sleep is very important to help us recover.

Are you in a flare at the moment? Or taking meds that might be making sleeping harder? I’ve come down from 40mg steroids and on 15mg currently and sleeping a bit better but steroids do make it hard to sleep. Think lupus itself also causes insomnia too.

Hope you get a good nights sleep soon

X

[imzi in reply to Melba1]

Yes a good nights sleep helps with so many problems.

I’m sorry to hear that you are also suffering from not being able to sleep.

No I’m not in a flare. I was on pred for over a year now on hydrocortisone (15mg).

I’m seeing my gp this week as I really need to get my sleeping sorted before going back to work or I won’t be able to function!

Thank you x

[Treetop33]

Someone else here recommended Holy Basil (it helps with the regulation of your adrenals). I just drink a couple of cups of Tulsi Tea (holy basil tea) and it does seem to have helped a bit.

It is so miserable not being able to sleep.

[imzi in reply to Treetop33]

Oh I will have a look into that.

Yes it’s horrible. I just feel moody and exhausted all the time

[1573]

Hi I had the same problem I went to see my GPand she gave amitriptyline I take 10mg about 7pm and it has helped at least now I get some restful sleep I know some people take a higher dose but 10mg seems to do the job for me hope you get sorted out its awful not being able to sleep.

[Chanpreet_Walia LUPUS UK]

Hi Imzi,

Have you spoken to your doctor about this?

Regular exercise helps to improve sleep quality. Exercise should be done at least a couple of hours before going to bed; otherwise the mind may be too active, making it more difficult to sleep. We published a blog article on exercising with lupus which you can read here: lupusuk.org.uk/lupus-and-ex...

The NHS Choices’ website provides information on sleep hygiene which I hope you will find useful: nhs.uk/LiveWell/sleep/Pages...

Please keep us updated, wishing you all the best.

[imzi]

Hi,

I did speak to them they thought it was anxiety but I don’t think it is. I’m going back on Friday to see my GP.

I have been going to aerobics in the evenings but this doesn’t seem to help either.

Thank you for the reply

[imzi]

I was in my bed for 11pm last night didn’t sleep until 5am. My body was so restless my legs were achy. I’ve had enough of not being able to sleep it’s horrible! I’m in such a bad mood today.even now my legs feel so so weak