Lupus rash advise

[Jensherg11]

Hi I'm new here, has anyone used Elecon cream for lupus on their face and lost all the pigment ?? My rash is less hard but it's taken the colour out of my face. Just wondering if this will improve ? Thank you 😊

[Puska]

I use elecon cream but was told to use it very sparingly as it is really strong. I only use it when the itch is unbearable. It is on my scalp so I cant actually see if I've had pigment change. Hope someone else can chime in soon for you.

[Jensherg11 in reply to Puska]

Thank you fir your help x

[Kirst83]

Hi there. I have used Elecon but not for while though. I use protopic ointment on my face now which again is just a tiny amount when you start to feel the itch. I have scarring on my face too which is from the lesion's and the pigment has gone in that areas. I have lost pigment on my arms from years of steroid and tar treatment. Everyone is different but I'm sure it will improve/ cool down as it looks like it's quite flared up. I hope it improves for you.

[Jensherg11 in reply to Kirst83]

Thank you 😊

[Jensherg11 in reply to Kirst83]

Do you have any advise on covering the rash up?? I don't really want to wear make up on it at the moment but when I do in struggling to find anything to actually cover it completely x

[Kirst83 in reply to Jensherg11]

Like you i don't really wear make up​ much. I think if you want to try and put something on i would use a little powder which might help with the redness slightly. Foundation would be a bad idea i think. Believe me i know you just want to cover it up but for me it would always aggrivate this rash. X

[happysally72 in reply to Jensherg11]

Mineral make up is most natural & good for sensitive skin. I use bare minerals and you can build up your coverage . Alternatively contact changing faces, they are fantastic, it's a free service, you can make a small donation if you choose to. They colour match to your skin tone and then give you a prescription for the products you need.

[foxglove in reply to Jensherg11]

Hi , I find a cheap(VERY!!!) - about £1 ... miss beauty.....from pound shops or similar, works really well put on sparingly then if you want dilute with a little water and spread, I react to most cosmetics but this is ok. - really does cover.

[Paul_Howard Partner LUPUS UK in reply to Jensherg11]

Hi Jensherg11 ,

We published an article on our blog last year about skin camouflage which you may find helpful - lupusuk.org.uk/skin-camoufl...

[happysally72]

Hi, sorry, I've no experience with using it on my face only on my legs. I ended up on oral steroids in the end, which got it under control far better than the topical steroid ointment. It's taken 2 to 3 years but it has gradually returned to a normal colour. 😀

I know we all tend to avoid the sun but please make sure you use total sun block, because your skin will be very sensitive to the sun where pigment has been removed. Your gp can prescribe a suitable sensitive one I think. I use sunscreen on my face, even if not leaving my house & if I go out I use sunblock factor 50 in summer & factor 30 in winter. (I have developed melasma).

[Jensherg11 in reply to happysally72]

Thank you so much for your help x