👣👣👣👣👣👣👣👣👣👣👣👣👣👣
MERRY CHRISTMAS!
I went Christmas shopping today. Due to the Lupus rashes/blisters as usual I was barefoot. The bottom of my feet got dirty but, the bottom still looks better than the top of my foot with rashes/blisters.
As usual my motto is
👣I WILL NOT LET LUPUS CONTROL MY LIFE👣
I wish all of you a VERY MERRY CHRISTMAS!
Remember Jesus Christ , is the reason for the season!
👣👣👣👣👣👣Tiras👣👣👣👣👣👣
YAY dear Bare Foot Gardener Tiras
Wish you & yours every best wish for Christmas and the New Year🎄🌟🎉🕊
XOXO coco
PS I ran into something the other day while reading research papers on lupus...which made me think of you....here is a link:
britishskinfoundation.org.u...
👣👣👣👣👣👣👣👣👣👣
Coco;
That is exactly what the blisters on top of my foot look like, except I have not had them bad on my toes yet, just on top.
Thanks for the link!
🎄🎄🎉🎉Wishing you the best for the Holidays!🎉🎉🎄🎄
👣👣👣👣Tiras👣👣👣👣
You're v welcome dear BFG...had you not posted your pics, I'd not have made the connection when I saw the pics & read the descriptions related to this & the other forms of epidermolysis bullosa. Apparently there are several versions of EB: Downing-Meera, junction, dystrophic & Kindler (Maybe you'll ask your medics about this? Would be v glad to know what they say!) 😉😘🎄
Ouch Tiras ,certainly looks sore.
Don't worry about the bottoms a bit of soap and water can soon fix that.
Great motto still- just keep it up!
Very best wishes to you and your family for Christmas and the New Year.
Let's hope 2017 brings better things for you and yours..
Take care.
Crusee
XX
👣👣👣👣👣👣👣👣👣👣
Crusee;
As long as it doesn't get rubbed, it does not hurt. However anything even a strap of a sandal will rub it and in just a few minutes it will start bleeding. As long as I'm barefoot it is ok.
By now even with soap the bottom of my feet are stained and before I can get the stain off, They get dirty again being barefoot, and the stain I got off is right back on them. So even clean they don't look much better than they do in the photo. I have learned that is going to be part of the barefoot life, stained feet?
The bottom of my feet are still stained bad even after a pedicure, soaking them, and then they scrubbing with a cheese grater and a corse (alsmost like sand paper like material). By the time I walk through the parking lot to the car, they look almost like they did before the pedicure.
Thank goodness it is still warm here. It is suppose to be close to 70 degrees Fahrenheit and sunny here through the holidays. So going barefoot is still not an issue.
Wishing you and your family A
🎄MERRY CHRISTMAS🎄
👣👣👣👣Tiras👣👣👣👣
I got thrown out of a supermarket (Tesco) by the security guard for being bare foot. Breach of health and safety.
Tried to explain I had an issue with my feet but he was having none of it. Oddly I wasn't "bare" as I was wearing very thick woolly tights. He was so unreasonable and I felt really humiliated; ended up abandoning my shopping.
👣👣👣👣👣👣👣👣👣👣
Ladybella;
That is so sad, we who have lupus or anyother medical issue, we can't control what issue we may have.
I have only been questioned a couple of times in the last 2 years here in the U.S.A (state of Alabama) about being barefoot. As soon as they see my foot they apologize. I have a statement from my doctor stating that wearing shoes causes me issues and I am not to wear them. There is a store close to me (Dollar General) that has changed their policy because of me! They use to have a sign that stated shoes required, it has now been removed.
I have also done some research, here in the U.S.A. And in Alabama, there are actually no laws aginst being barefoot. The store may have a policy but, can't really in force it. However I do live in the southeastern part of the U.S. And going barefoot, especially in the summer is not an uncommon thing.
Laura and I went Christmas Shopping again last night, the temperature here is in the mid 70's degrees Fahrenheit. So flip flops are still popular. We went to Walmart, and then to a restaurant to have dinner. There was not a word said at either place about me being barefoot.
I will have to admit I have the best wife, she knows my issue and a lot of the time she will go barefoot to make me feel more comfortable, and to show support of me. However, she has always Disliked shoes, she had rather be barefoot anyway. She went barefoot a lot when we were dating 40 years ago!
You might want to check, while doing my research, I did read about Tesco making it a policy about being barefoot. It is not a law. A lot of places here have a sign that states the health department is who issues that you must have shoes on but, that is not a true statement. You can go barefoot, even if you don't have an issue! Only privat clubs with a dress code can require certain clothing, such as coat and tie required.
It might be worth checking into. I would have an issue shopping at a place that did not support disable people, and unfortunately for me the rashes/blister are a disability for me.
I have shopped in Tesco years ago when the company I work for built a plant in Kaposvar Hungary, but that was 15 + years ago.
Again so sorry I know that must have been embarrassing, to have a health issue and then some dumb person try to show off what little Authority they have. Makes them feel big but, shows just how stupid they really are!
Wishing you and your family A
🎄MERRY CHRISTMAS🎄
🎉AND A HAPPY NEW YEAR🎉
👣👣👣👣Tiras👣👣👣👣
Hi!
Yes it was embarrassing but I haven't shopped there since so their loss.
Hope you had a great Christmas.
❤🎄❤🎄❤🎄❤🎄❤🎄❤
Merry Christmas, Tiras, to you and all of your family!
Lorelei
❤🎄❤🎄❤🎄❤🎄❤🎄❤
👣👣👣👣👣👣👣👣👣👣
Lorelei;
Thank You! We had a wonderful Christmas!
Laura got me gift certificates for massages and pedicures. With the lupus issues I have that is the best thing I could have gotten! I got other gifts too. (I bet not many husbands got pedicures from their wifes), they may have given their wives pedicures for Christmas? LOL
I hope you and your family had a GREAT CHRISTMAS🎄🎄🎄🎄🎄
Wishing you and your family A 🎉HAPPY NEW YEAR🎉
👣👣👣👣Tiras👣👣👣👣
Tiras,
Your good advice about skincare became part of our Christmas! I bought pretty jars, filled them with 🌴 coconut oil🌴, and gave them to my daughters. Two of them have eczema, and we all have dry skin now that the heat is on. I think that they are going to become 🌴coconut 🌴 devotees just like I am! So now you know that you were the inspiration for three of the gifts under our tree this Christmas!
How nice that you got gift certificates from Laura!! I read recently that massage is very beneficial to folks with lupus, that it reduces muscle discomfort long after the massage has ended. I think the pedicures are a great idea! It lifts my spirits when my feet look good and feel smooth. If you have decided that you like nail polish, you might choose OPI brand. It lasts longer than any other brand, and their colors have fun names like "Pink-ing of You" & "Hotter than you Pink". They have many pale shades that are light buff to slightly pinkish and translucent. Most salons have OPI polishes available for you to choose. I only get a pedicure about twice a year, but I enjoy every moment when I do!
⭐Happy Barefoot New Year to you, Tiras, and to your Family!⭐
Lorelei
👣👣👣👣👣👣👣👣
Lorelei;
Glad I could help, I use coconut oil daily. Coconut oil has many uses. Google uses for coconut oil. Laura uses it also.
OPI Polish is what I use. Depending on the time of the year I use 3 colors
Samoan Sand (winter to early spring)
Bubble Bath (spring to mid summer)
Barefoot in Barcelona (mid summer to late fall early winter, this one is fitting for going barefoot!)
These colors look natural. I'm not going with red, bright pink, etc. LOL!
I want my nails to look neat and natural. I don't want it where you can tell they have polish on them!
I also use a Matt finish top coat. That does not shine.
I usuall have them redone 2 1/2 to 3 weeks. Not chipped but, you can see where the nail has grow out.
Again I am glad I was an inspiration to you!
Thank goodness it is still warm here and going barefoot is still not an issue. 70 degrees here today.
Wishing you and your family the BEST!
👣👣👣Tiras👣👣👣
Lupus rash
