I make post about every day life. Yes I do post when having Lupus issues also. Most of my post show me doing stuff, I do this hoping that I may encourage some one who is feeling down. If I can lift one person up or just help one person, then I have done what I'm suppose to.
We live every day with Lupus and other diseases, I just want everyone to know DON'T give up. We must keep going no matter what Lupus throws at us. Yes, we must adapt and over come.
Yes, there are days (and sometimes a lot of them) that we can't do anything, but, don't let that stop us on good days.
Just remember my motto
LUPUS HAS CHANGED MY LIFE, BUT, I WILL NOT LET LUPUS CONTROL MY LIFE"!
Everything I do and everywhere I go I have to do barefoot because of lupus, but I will not let it stop me. Not even when it comes to cutting, splitting, & stacking firewood!
I wish the very best for each and every one of you!
Written by
Tiras
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Hello Tiras .... I am so glad I lifted my phone & read your thoughts. I am dealing with many painful & diminishing illnesses presently & feel so alone. Thank you so much for your wonderful post & somehow allowing me another viewpoint! I haven't posted for so long .... too poorly, too painful. Oh the self pitying had definitely set in & I was even wondering where my so called best friend has disappeared to? I know she has a "busy life & is a healthy lady. I am glad that she is so well, yet I wonder how caring friends can become so separated. Gosh I sound rather like a spoilt child! Oh hey time to change the vibes, I am who I am & cannot let my illnesses totally control my life!!! Thank you Tiras for your well timed apt post. .... take care & look after yourself. Hello to all my HU friends, thinking of you all. Xx Pixiewixie
So sorry to read what a tough time your having health wise and friendship wise!. Your post struck a chord with me and no way are you acting like a spoilt child!. I do find December is a tough month when you can't do what everyone else is doing!. They're so busy with family and work commitments that it's easy for us to feel very left out and yet we feel torn as know we should be understanding but sometimes that's hard if we're feeling vulnerable ourselves!. I'm having problems with someone who I thought was a good friend , we even have similar illnesses but that may count for nothing and it's hitting me harder than I thought it would!. This month does highlight these things particularly!.
As to your health I hope if your having a bad time it improves for you. Could you try to bring forward a Rheumy appt?.
I hope sharing helps you and you feel a tiny bit better. Lots of TLC I think, how about giving yourself your favourite treat?. We just have to get thru as best we can don't we?X
We are here not only to share our lupus issues (in hopes someone else can give us answers) we are here to lift each other up, to inspire each other.
I may be 7 time zones away, but you have a friend! Any time you need to vent, talk, cry, and or scream, I'm here! PM any time I'll give you my phone # and or email.
We all get down and it seems there is no one around to help us or talk to us. This group of us here is more like a family. So sis if you even need to talk to your brother I'll be here!
Hi well done and what a inspiring post to many people. I don’t have lupus but I think you’re post refers to many of us. Like you I try every day not to let my illness get the better of me. I will do as much as I can on my better days and rest on my bad days. Take good care of yourself and thank you for your post. Very inspiring. 🤗🤗🤶🎅❄️☃️🎄xxx
No this post was not just for those of us with Lupus, it is for all of us who have whatever disease? Any of us who are dealing with life changing health issues. We all at some point will need someone to talk, text, and or email just to get stuff of of our chest.
We all need to see and know that others have similar issues and are over coming the challenges they face, that can inspire us to do the same!
Yes, I may have to do everything barefoot, I may have to have pink nails (not normal for a guy) to keep them from falling off by using a nail treatment, but, I still have my feet, so I count that as a blessing! There are those who have only 1 foot or had to have both feet and or legs removed and they continue to do what they can. They still have to live and not give up!
We all can and should be an inspiration to someone else, we are here to help each other, that is what it is all about!
The old saying "he who dies with the most toys wins"
That is definitely not true!
He who has God and the most friends when we die are the real winners!
Worldly possesses are not worth anything the moment we die. It is the memories our friend and family have of us, that is the real treasures of this world, not gold and silver!
Dear Tiras, Misty & Jan101, It was lovely to read your responses. Thank you for taking time & having the gentleness & caring to allow me to feel understood & accepted. Thank you so much , love Pixiewixie xxxx.
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Lupus is so underestimated by so many people.
Living with someone with Lupus
