Barefoot With Lupus

[Tiras]

On December 1, 2014 was the last time I wore shoes, I have tried to wear soft fluffy house shoes to no avail. I can tell you the all the times I tried, because I ended up with blisters and or raw spots that were bleeding. In the last 3 years I have been barefoot 99.996% of the time.

My motto still is

"Lupus has changed my life, but, I will not let Lupus control my life"!

I still do everything and go everywhere, I just had to adapt and overcome. I have gotten use to going barefoot, now it just seems natural.

No shoes

No problem

Have a good night or Day depending on what part of the world you are in?

[gg317]

woah, not sure what to say...so sorry. How do you manage going places without shoes. Id get kicked out anywhere i went.

[Tiras in reply to gg317]

Honestly, there have only been a couple of times it was an issue. Once they see my feet and have explained it is a lupus issue, it has been taken care of. Besides that my dermatologist has given me a statement to keep with me, that states that I can not wear shoes. So with that it is resolved as a disability issue, and falls under the disability act. I did have a issue at a Waffle House restaurant. Called upper management, the VP who is an attorney got back with me very quick, and that is what he told me. They apologize and I got free meals for 6 months, not only for me but, anyone who was with me.

Their attorney told me if they or any one else refused me service or shop in their stores, and I can't wear shoes they would be breaking the law by disability discrimination.

Thank you for your concern!

Wishing you the best!

[gg317 in reply to Tiras]

well, there ya go. guess you dont get much snow where you are at?

[Tiras in reply to gg317]

No, I live in Alabama, we have not had a cold winter here in several years. The last 2 years on Christmas Day it has been in the 80's

[gg317 in reply to Tiras]

ah, sweet home Alabama where the skies are so blue! good for you!

[MVJohn62]

Thank God, you don't have blisters at the bottom. I have to manage both.

With out extra soft sole I can't stand or Walk, the same time upper blisters are painful with the pressure of the steps.

Really your life is a motivation for me to move on.

[Tiras in reply to MVJohn62]

I can't even imagine what that would be like, bless your ❤️.

I hope you can find something to help, but I know from my experience, I have found nothing yet that will not rub blister!

Wishing you the BEST!

You will be in our thoughts and Prayers!

[Lupiknits]

You are ❤️ But in the frozen north of England and Raynaud's, bare feet would be unbearable. I hope your wife is well x

[Tiras in reply to Lupiknits]

Yes, living there it would be almost impossible to go barefoot year round.

Our temps now are in the 70's degree range (Fahrenheit) in the day. So it is not an issue here in Alabama.

Laura is so so not doing the best but, more testing in the near future?

Wishing you the best!

[leslieliesel in reply to Tiras]

Aren't you suppose to stay out of the sun?? I get a flare when unprotected by the sun...bummer I used to live for the hot summer days(live Northeast US)

[Tiras in reply to leslieliesel]

Yes, and when I do go out (I love to fish) I literally lather up in sunscreen.

Again I'm not going to let lupus stop me.

I know if I'm out to long or sunscreen wears off I'll get even more rashes. My doctors and I have talked about it, that I'll just put up with it. Not going to stop living and doing what I enjoy! Life is short enough as it is, then add a Disease on top of that, well that makes it even shorter. Live life to its fullest!

[leslieliesel in reply to Tiras]

Not stopping me either !!! Itsy bitsy bikinis are out lol....SPF 50 long sleeves and leggings are my new swim wear!!

[Tiras in reply to leslieliesel]

Yes, I had to stop wearing biking speedos And going to nude beaches!

😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂

And yes, I am kidding about both!!!!!!!

[leslieliesel in reply to Tiras]

My husband wants to go to Florida when he has his vacation in Feb...He really needs a vacation , so Florida it is!!...I wouldn't mind some warmth myself..I even bought a spf parasol ....Sunny Florida...well, I am glad I enjoyed the warmth of the sun when I could.

I saw you cutting that big tree...I also use the chain saw..its getting harder for me and I don't feel as safe climbing to get to the limb I need to cut.

[Tiras in reply to leslieliesel]

South Florida is nice that time of year. Tampa and further south. Where are Y'all from?

I am about 200 miles due north of Panama City Beach. I'm in Alabama. Even here very mild winters.

We heat with wood, we have 50 acres, so we cut our own fire wood. I cheat, I use my dozer to bring the trees to a clear level spot, I use the dozed to pick it up and hold it up, I can't bend over very long to cut it, so I keep it about waist high. Then I roll the large pices of wood in the bucket of the dozed, and carry them to the wood splitter.

It cost us out of pocket money, not counting our time, around $50.00 to $75.00 a winter to heat our house. We have a new insert, and it will heat our house completely, we have right at 2500 sq ft of living area.

Wishing you the best and have a Good and BLESSED SUNDAY!

[leslieliesel in reply to Tiras]

Cape Cod MA...mild winters for the Northern longitude because of the ocean effect. 50 acres!! No worries about where to get your Wood!! We will go to St Pete Florida..I am hoping to meet my half sister & brother for the first time..I met my birth father and other half brother fall 2016....took decades to find my bfather...Nice not to wonder & search anymore....Do you and your wife have Auto Immune disease in your families??..My Paternal half sister, I found out has RA..

I as telling my husband about your feet hurting...as I said, he also has Sjogrens and has been complaining about his feet for years...He can not find shoes that do not hurt...can't go barefoot in the cold though

[creaky]

Hi Tiras, I hope things are good for you at the moment.

Sorry to hear that your feet are still such an issue. My are a lot causing problems, due to ongoing pain. Choosing shoes are a nightmare, but I would be in trouble if like you I couldn't wear any at all.

So wet here in Wales that I'd probably get trench foot! Cold too we've had heavy frosts this week.

Like you I have made the decision that lupus will never define me. ☺️ sometimes it's easier that others.

[Tiras in reply to creaky]

Things are going as well as can be expected I suppose?

As for the skin on my feet, the doctors have told me it will never get any better just slowly progressively get worse? The bright side to that is, I will not have an issue on what color, style, or shoes to buy! Plus I will save a lot of money by not having to buy shoes! 😂😂😂😂😂😂😂😂😂😂😂😂

Might as well laugh and joke about it, nothing else I can do. So I just continue to live and do everything and go everywhere I want to.

We can't let Lupus stop us from living and enjoying the life we have.

Wishing you the best!