Stomach problems: Are there any of you having... - LUPUS UK

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Stomach problems

mtbr profile image
mtbr
12 Replies

Are there any of you having stomach problems with lupus one of the GP doctors I saw last year told me to ask rheumatologist could lupus be affecting my stomach never did get an answer been for sigmoidoscopy twice and endoscopy once they say everything looks normal every 10 days or so if I am lucky to go that long I have bouts of stomach pain & diarrhea totally exhausted going to make appointment with GP but not holding out much hope

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12 Replies
Minka1 profile image
Minka1

Yes on left a hand side like you colon grumbling ring any bells can be angsiety

mtbr profile image
mtbr in reply toMinka1

Yes it can be like that gurgling noise is ridiculous but pain seems to end up all over my stomach eventually

Chris21 profile image
Chris21

Unfortunately lupus doesn't mind which part of the body it picks on. Lupus uk have some really useful leaflets. I have pains in my stomach area, tests haven't shown anything except my pancreas could be the cause.

mtbr profile image
mtbr

Its very frustrating not knowing whats going on managed to get an appointment with my doctor today which is unheard of but also got a letter from hospital this morning (I thought they had forgotten about me)to make a follow up appointment from when I was last in for sigmoidoscopy and endoscopy although I got a letter saying everything was normal so will see what he has to say in August still going to see doc today as well heres hoping!! I will find those leaflets thanks Chris

les61 profile image
les61

I thankfully don't have stomach pain but I do suffer with diarrhea sometimes becoming almost incontinent. What does the doc say......it's lupus!

mtbr profile image
mtbr

I know does he offer you any help with it

I also feel as though I have a temperature and feel physically weak and exhausted

Referalgirl profile image
Referalgirl

Check to see if you have IBS

mtbr profile image
mtbr

I think that is what they will say it is if they don't find anything else. My stomach problem is accompanied by lupus rash as well as other symptoms but only seems obvious to me GP says today see what hospital has to say in August in the meantime treat symptoms

Bebe76 profile image
Bebe76

Have you been tested for Coeliac disease? I have both SLE and Coeliac disease. Be sure you have been eating gluten before you do the blood tests.

mtbr profile image
mtbr

Hi no I haven't does GP do that or will specialist I am willing to do whatever it takes now to get the right help and also to know what it is

Bebe76 profile image
Bebe76 in reply tomtbr

The initial test is just a blood test your GP can order. It measures the level of anti-TTG antiboday in your blood. For this to be accurate, you have to not be avoiding gluten. If that is positive, they will refer you to a gastroenterologist for more tests and diagnosis.

Here is some information from Coeliac UK

coeliac.org.uk/coeliac-dise...

mtbr profile image
mtbr

Thank you very much I will have a look at link

Cheers

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