We all know how dibilitating, frightning, confusing and frustrating the LUPUS FOG can be.... but....we also appriciate how funny, comical, ironic and just plan silly it can be too...
Ie...keys in fridge, shower left running, make up in bread bin, money in washing machine, talking in tounges etc....I am sure you all have some amazing stories about how it effects you.
The hardest for me is the memory loss, I just cant remember things, especially things I have done or achieved and the meningitis and septicaemia have increased the rate of deterioration.
To combat this, I use MY MEMORY TREE, as well as writing. This tree is now very important to me. EVERYWHERE I visit, I bring something small back to put on it.
Because it is tactile, I find that by looking, touching and the occasional prompting, I can now remember things a little easier... the words may not come easily, but thats covered by writing...but my family and I are also developing our own translation for my sayings such as...
Thingbob (anything I am pointing at)
Button tool (tv remote)
Mouth cleaner (toothbrush)
Water hose (shower) etc, etc, etc...
In fact, that will be my next project... a translation book for lupies and their families during fog attacts...... suggestions here please... lol
Anyway, I digress, I just wanted to pass on and share this amazing idea, which was my daughters, it has helped me, maybe it could help someone else.
Thank you for reading.
Much love, health and happiness to all. X