Meeting people that sync with your Lupus and symptoms is simply unique, needed and helpful.

[Dalilatm]

Hello All!

So glad that we all Lupus people can chat about our condition and lives here in this group. It's been so helpful for me.

I've had Lupus for +13 years now. I was a teenager and at that time it was difficult to deal with Lupus and being a teenager. I've gone through two big hemolysis, gallbladder removal, skin ulcers, blood transfusions, shingles, anaemias, mumps, vasculitis, eternal gastritis, joint and muscle pain for a decade, blood clot in my leg. And this week I had my first kidney biopsy. Truly painful. This was totally new for me, kidneys had been always in perfect conditions. Waiting for the results now! Treatments I've had? Hydroxychloroquine, steroids, Azathioprine, Mycophenolate, Methotrexate, Leflunomide, aspirin and folic acid forever. And what has been always helpful is to meet people that have understood me, and what means Lupus in your life. Meeting other Lupus people in the Hospital, chat, and share similar feelings, tips, even cry really changed me, and the way it let flow all that tension that means not having a refular, full, normal life.

I am always very positive about life, that is something that Lupus taught me. As well as the value of family. I thank God for every day of my life because yes, I am alive. I am. And that is simply priceless No matter what, life is beautiful.

Keep sharing your thoughts and experiences. They make a difference to many.

Cheers!

[willowwag]

Hi there, I have to say a big well done for the above post very well said. Lupus UK is a total god send the support you get on this site is second to none,and also the help and advice. You learn a lot share alot and everyone is here for each other trying to find the best way to manage their symptoms and carry of with the battle of lupus. Well done Lupus Uk for your fantastic ongoing work to give us lupus patients support.

[johare]

I agree I was new to this site and managed alone because I thought I could. This site has opened my eyes to options and also helps to support others.