This post is for the discussion of one of the next important questions in the research of lupus and employment. For more background about this, please read the post here - healthunlocked.com/lupusuk/...
We have not quite decided on our approach to this – there is a limit to how much we can achieve in one grant, but we are considering doing detailed interviews with
•People aged 20-30 years old, either in work or not able to work to understand their experiences, including the impact of lupus on education and working life, or if not in work what stopped them working, what help have they had, how they see future etc.
•People aged 30-40 years, as above though less emphasis on education, though perhaps changes they have made in employment because of lupus
•People aged 40- 50 years, as above – trying to find people both in work and out of work, including some who have never worked, and some who have retired on medical grounds.
•People aged 50-60 – both in work and out of work with some of the same questions, though this will be the age group that includes the group of women pensioners who are getting their pensions up to 7 years later than they were expecting and now have ill-health
Employment includes both self-employment and employment and we will try to get a spread of both. Some people may be doing less than 16 hours a week and on ESA or other benefit.
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