Going to Lupus meetings in your area.

[Slowmo]

Hiya,

I just wanted to say how helpful meeting up with others is, I attended a group meeting with the South Wales Lupus group last week and came away with so much more information from others who understand how I feel and do not judge me.

It is so reassuring to share your experiences with others and also to chat about how this condition affects us.

I just wanted to mention this, as, if there is a group in your area it really is well worth going along, meeting people and making some new friends.So go on, get along and join a group and attend a meeting!

Slowmo

[Manolo33]

Hi, this is something I would love to do - meet others in a similar situation. I am in the north east - Gateshead to be specific, and contacted the north east lupus secretary but unfortunately there are no meetings as no one used to turn up

This website has been fabulous - it's amazing how 'normal' I feel after reading other people experiences.

I was only diagnosed with SLE at the end of June, but have had a bit of a journey to get here - starting off with a diagnosis of uveitis - which brought its own challenges!

Think I may need to take the initiative and try to organise something ... Hmmm food for thought.

Thank you for sharing your positive experience. :-)x

[Pipido36]

Hi, Manolo33

I started TEESSIDE lupus support group and would be pleased to meet and chat about our experiences. We have not yet had a meeting but will be pleased if you can join the group. I was diagnosed with Lupus in 2003 and have had other illness connected to it. Keep on keeping on and take care. Xx

[Manolo33 in reply to Pipido36]

Ah that is fabulous, I would love to join your group. Thank you.

Now the 'novelty' of having a label as opposed to simply a load of mismatched symptoms has worn off I am feeling a little lost. Thanks again. Xx

[Slowmo]

To Manolo, so glad you find the site helpful, and also really glad I posted this blog as thanks to Pipido36 you can now join up with others. I'm sure it'll be really enjoyable. All the best both.

[T3KAO]

Hi Slowmo, glad you enjoyed your first meeting. I went to my second meeting on saturday with all the Cambridgeshire Lupus group good turn out. Just talking to people who know how your feeling is so nice.

Take care xx