Good morning Luppies. Can anybody define a flare up for me please. Every day i am in constant pain and some days cant even move I feel like every bone is broke. With the help of co codamol this eases it for me. I have shocking memory loss even were i can be doing something and forget what im doing. I find it hard to come to terms with forgetting so many of my memories and now keep a diary of places to go and things to do. My breathing is bad and struggle with it. I get approx 4 hours sleep on a night because of the insomnia, but then again so tired !!!! I was so badly damaged by the rash over my body that i am now left scarred, but thanks to the hydro and steriods the majority of that has cleared. I thought the meds were supposed to take away the pain and generaly make me feel better... no such luck. I can say this year i have had 2 good days and like an idiot try to get everything done when in that frame of mind, realised that this is a big mistake. I have been poorly for over ten years and only just been diagnosed with lupus sle, Like most people on here fobbed off for years and told it was my age... im only 48 !!! I also have a liver disease called PBC and they thought it was down to that until my new liver specialist said no and sent me to see a rhuemy who specialised in lupus. Please help me define when im not in a flare.
thank you for listening