I got offered a drug called biliexa I can't spell it right haha! My specialist said I would get it but now 6 months in they still can't get me it!! Iv been through so many drugs since November even ended up having 6 sessions of chemo that nearly killed me as it was to powerful for my body! In at the end of fighting and the worse but is now in so ill it's effecting my 3 amazing young children as I can't be there mum as Iv had it stripped from me!! I hate lupus!!!!!!! Any ideas would be great! We are looking at buying the drug now as if I went private I can have it next week !!!
This is me its all over my body and now loosing hair!! Anyone done any fundraising for money? I feel like Iv not got a right to do it as Iv only seen cancer patients do it?? I do not leave the house and Hardly no one knows how bad Iv got?