I recently had a 2 week trial of 10mg steroids whilst waiting for test results. at the end of the two weeks I went back to see Rhumey, who asked how I had found the steroids..... I said that although I was by no means cured, the steroids had made me feel the best I have felt for last 2 1/2 years, and I had been able to significantly reduce the number of opiates I was taking daily. I said I had spoken to GP, who had sugested the dose may be increased for a short period of time and also begin hydroxycloroquine which should keep fatigue and joint pain under control without the need for long term steroids (obviously Rhuemy had to perscribe this not GP).
To my surprise Rheumy said that I couldnt have steroids or hydroxy... as all bloods were negative.
My GP has now refered me to st Thomas's for a second opinion as the GP suspects a seronegative condition is cursing symptoms (NOTE: I have had several ocasions over last 2 1/2 years when CRP and ESR have been normal yet when surgions do exploritory surgery there is significant imflamation and free fluid )
Today I recieved the report from first rheimey, to my total shock and amazement he has written, 'two week trial of steroids resulted in NO improvement of symptoms.' why has he written this???? I cried and begged him to let me stay on the steroids or try hydroxycholoquine!!! I fully understand why he dosnt want to treat me, but do not understand why he has written the total opposite of what I told him.
I have emailed his secretary asking for an explanation.