Hi I'm just wondering if anyone has any advice on what I should do next.
I have had pain in wrists and ankles on and off for 8 years. Saw rheumatologist who said it was non degenerative and I should swim. Eye pain and blurred visionwass investigated and had no cause. I have reactive lymph nodes which was diagnosed 5 years ago after a node was removed for biopsy. Bone spur and calcium removed from shoulder two years ago. Sun sensitivity and skin rashes v on chest constantly present, red on cheeks and nose comes and goes. Horrendous itchy painful rash triggered on holiday recently. Ankles are puffy and sore, hands tingle and get red and white blotches on palms. Reading glasses hurt my nose and pain radiates to cheek bone. Really sore tender areas on ribs. Burning aching and shooting pains through lower arms hands and feet. I'm not sleeping or eating. GP thought was connective tissue disorder but bloods were all clear. I have been off work for weeks because of pain tiredness and generally feeling awful, can't think properly. GP wanted me to see consultant while the symptoms are present so I paid for a private consultation today. He didn't listen to me he asked very few questions and dismissed it as being mainly a rash. He gave me a steroid injection and said I should feel better next week.
I feel so low right now because he obviously had no interest in hiw these symptoms are affecting me. He said it's probably not a ctd because the symptoms are not classic.
I managed to cook tea for me and the kids but had to have one of them cut my food up because it causes too much pain. I couldn't even hold the pen properly to fill in the form at the hospital.
I hope he's right and I feel better next week, but I'm still scared to go in the sun and am really want to understand why I feel so awful.